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Améliorer les cadres de référence pour le suivi de l’application de la Convention des Nations Unies relative aux droits des personnes handicapées : une illustration à travers le processus de mise à jour de l’International Classification of Functioning, Disability and Health (ICF) in Alter, Vol. 9, n°1 (janvier/mars 2015)
[article]
Titre : Améliorer les cadres de référence pour le suivi de l’application de la Convention des Nations Unies relative aux droits des personnes handicapées : une illustration à travers le processus de mise à jour de l’International Classification of Functioning, Disability and Health (ICF) Titre original : Improving the frameworks for the monitoring of the implementation of the UN Convention on the rights of persons with disabilities: The example of the update process of the International Classification of Functioning, Disability and Health (ICF) Type de document : texte imprimé Année de publication : 2015 Article en page(s) : p. 64-74 Langues : Français (fre) Mots-clés : CIF ICF Mise à jour Ontologie CDPHUpdate Ontology UN CRPD Résumé : Résumé
L’article 31 de la Convention des Nations Unies relative aux droits des personnes handicapées engage les États Parties à recueillir des données statistiques qui leur permettent de formuler et d’appliquer des politiques visant à donner effet à cette Convention. La Classification internationale du fonctionnement, du handicap et de la santé (CIF) figure parmi les cadres de référence disponibles pour structurer un recueil de données sur la participation sociale des personnes handicapées. Un processus de mise à jour de cette classification, prélude à sa révision, est en cours depuis 2010. Cet article présente un point de vue sur ce processus. Après un aperçu des questions soulevées par les travaux menés à partir de cette classification, une présentation des apports de ceux entrepris avec la version pour enfants et adolescents fait ressortir les contours des premières propositions pour sa mise à jour. Enfin, la prise en compte des choix effectués dans le cadre de la préparation de la onzième version de la Classification internationale des maladies met en lumière des enjeux liés à la révision de la CIF.
Le texte complet de cet article est disponible en PDF.Abstract
The article 31 of the United Nations Convention on the Rights of Persons with Disabilities engages States Parties to collect statistical data enabling them to formulate and implement policies to give effect to the present Convention. The International Classification of Functioning, Disability and Health (ICF) is one of the available frameworks that allow to structure data collection on social participation of persons with disabilities. Since 2010, an update process, prelude to its revision, has been in progress. This article presents one viewpoint about this process. After an overview of the issues raised in the works done on the classification, showing the contribution of the development of the Children and Youth version allows to introduce the frame of the first update proposals. Lastly, taking into account the choices made for the preparation of the eleventh version of the International Classification of Diseases highlights some implications for the revision of the ICF.
Le texte complet de cet article est disponible en PDF.
Permalink : ./index.php?lvl=notice_display&id=35620
in Alter > Vol. 9, n°1 (janvier/mars 2015) . - p. 64-74[article] Améliorer les cadres de référence pour le suivi de l’application de la Convention des Nations Unies relative aux droits des personnes handicapées : une illustration à travers le processus de mise à jour de l’International Classification of Functioning, Disability and Health (ICF) = Improving the frameworks for the monitoring of the implementation of the UN Convention on the rights of persons with disabilities: The example of the update process of the International Classification of Functioning, Disability and Health (ICF) [texte imprimé] . - 2015 . - p. 64-74.
Langues : Français (fre)
in Alter > Vol. 9, n°1 (janvier/mars 2015) . - p. 64-74
Mots-clés : CIF ICF Mise à jour Ontologie CDPHUpdate Ontology UN CRPD Résumé : Résumé
L’article 31 de la Convention des Nations Unies relative aux droits des personnes handicapées engage les États Parties à recueillir des données statistiques qui leur permettent de formuler et d’appliquer des politiques visant à donner effet à cette Convention. La Classification internationale du fonctionnement, du handicap et de la santé (CIF) figure parmi les cadres de référence disponibles pour structurer un recueil de données sur la participation sociale des personnes handicapées. Un processus de mise à jour de cette classification, prélude à sa révision, est en cours depuis 2010. Cet article présente un point de vue sur ce processus. Après un aperçu des questions soulevées par les travaux menés à partir de cette classification, une présentation des apports de ceux entrepris avec la version pour enfants et adolescents fait ressortir les contours des premières propositions pour sa mise à jour. Enfin, la prise en compte des choix effectués dans le cadre de la préparation de la onzième version de la Classification internationale des maladies met en lumière des enjeux liés à la révision de la CIF.
Le texte complet de cet article est disponible en PDF.Abstract
The article 31 of the United Nations Convention on the Rights of Persons with Disabilities engages States Parties to collect statistical data enabling them to formulate and implement policies to give effect to the present Convention. The International Classification of Functioning, Disability and Health (ICF) is one of the available frameworks that allow to structure data collection on social participation of persons with disabilities. Since 2010, an update process, prelude to its revision, has been in progress. This article presents one viewpoint about this process. After an overview of the issues raised in the works done on the classification, showing the contribution of the development of the Children and Youth version allows to introduce the frame of the first update proposals. Lastly, taking into account the choices made for the preparation of the eleventh version of the International Classification of Diseases highlights some implications for the revision of the ICF.
Le texte complet de cet article est disponible en PDF.
Permalink : ./index.php?lvl=notice_display&id=35620 Exemplaires (1)
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Exclu du prêtLooking at hospitalized persons throughout the prism of the handicap / M. Giral in Annals of physical and rehabilitation medicine, Vol. 61, n°1 (Janvier 2018)
[article]
Titre : Looking at hospitalized persons throughout the prism of the handicap Type de document : texte imprimé Auteurs : M. Giral ; B. Boussat ; F. Lombard ; S. Stempfle ; P. François ; Dominic Pérennou Année de publication : 2018 Article en page(s) : p. 12-17 Note générale : Doi : 10.1016/j.rehab.2017.03.001 Langues : Anglais (eng) Mots-clés : Disability ICF Handicap Hospitalized person Rehabilitation Résumé : Objective
To describe the disability status of non-selected hospitalized persons.
Methods and findings
We conducted a cross-sectional survey to assess activity limitations of every person older than 18 years hospitalized in a regional university hospital covering all medical fields. Evaluators rated, on a scale from 0 to 4, 22 selected items of the International Classification of Functioning (ICF), covering the 6 following domains: learning and applying knowledge, general tasks and demands, communication, mobility, self-care, and interpersonal interactions and relationships. Univariate and multivariate analyses were performed to analyze the prevalence, severity and profile of the handicap in terms of sociodemographic characteristics and care pathways.
Results
Among 1572 eligible persons, 1267 (81%) were surveyed (mean age 62.7±20.4years; 655 males [51.7%]). Overall, 82% showed at least one activity limitation. For 52%, disability was severe or total for at least one ICF item. Prevalence of disabilities was higher for mobility (75%) and self-care domains (63%). Disability was strongly related to age: age older than 80years versus 18 to 44years (OR=12.8 95% CI 6.4–27.9]; P<0.01). Disability was associated with hospitalization in rehabilitation units (96%; OR=4.3 [95% CI 2.2–5.3]; P<0.01). Severe disability was associated with hospitalization in critical care units (OR=6.7 [CI 3.2–15.1]; P<0.001) and psychiatry units (OR=5.3 [CI 2.7–11.4]; P<0.001).
Conclusion
Handicap was common in hospitalized persons, involving all 6 tested ICF activity domains, particularly mobility and self-care. This study alerts care givers, hospital administrators, and in general, people influencing health policies about the need to plan actions to reduce activity limitations of hospitalized persons, whatever the cause of the hospitalization.Permalink : ./index.php?lvl=notice_display&id=80434
in Annals of physical and rehabilitation medicine > Vol. 61, n°1 (Janvier 2018) . - p. 12-17[article] Looking at hospitalized persons throughout the prism of the handicap [texte imprimé] / M. Giral ; B. Boussat ; F. Lombard ; S. Stempfle ; P. François ; Dominic Pérennou . - 2018 . - p. 12-17.
Doi : 10.1016/j.rehab.2017.03.001
Langues : Anglais (eng)
in Annals of physical and rehabilitation medicine > Vol. 61, n°1 (Janvier 2018) . - p. 12-17
Mots-clés : Disability ICF Handicap Hospitalized person Rehabilitation Résumé : Objective
To describe the disability status of non-selected hospitalized persons.
Methods and findings
We conducted a cross-sectional survey to assess activity limitations of every person older than 18 years hospitalized in a regional university hospital covering all medical fields. Evaluators rated, on a scale from 0 to 4, 22 selected items of the International Classification of Functioning (ICF), covering the 6 following domains: learning and applying knowledge, general tasks and demands, communication, mobility, self-care, and interpersonal interactions and relationships. Univariate and multivariate analyses were performed to analyze the prevalence, severity and profile of the handicap in terms of sociodemographic characteristics and care pathways.
Results
Among 1572 eligible persons, 1267 (81%) were surveyed (mean age 62.7±20.4years; 655 males [51.7%]). Overall, 82% showed at least one activity limitation. For 52%, disability was severe or total for at least one ICF item. Prevalence of disabilities was higher for mobility (75%) and self-care domains (63%). Disability was strongly related to age: age older than 80years versus 18 to 44years (OR=12.8 95% CI 6.4–27.9]; P<0.01). Disability was associated with hospitalization in rehabilitation units (96%; OR=4.3 [95% CI 2.2–5.3]; P<0.01). Severe disability was associated with hospitalization in critical care units (OR=6.7 [CI 3.2–15.1]; P<0.001) and psychiatry units (OR=5.3 [CI 2.7–11.4]; P<0.001).
Conclusion
Handicap was common in hospitalized persons, involving all 6 tested ICF activity domains, particularly mobility and self-care. This study alerts care givers, hospital administrators, and in general, people influencing health policies about the need to plan actions to reduce activity limitations of hospitalized persons, whatever the cause of the hospitalization.Permalink : ./index.php?lvl=notice_display&id=80434 Exemplaires (1)
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Exclu du prêtDevelopment and assessment of a home environment checklist to evaluate mismatch between patients’ ability and home environment / Masahiko Mukaino in Annals of physical and rehabilitation medicine, Vol. 63, n°4 (Juillet 2020)
[article]
Titre : Development and assessment of a home environment checklist to evaluate mismatch between patients’ ability and home environment Type de document : texte imprimé Auteurs : Masahiko Mukaino ; Birgit Prodinger ; Yuki Okouchi ; Kouji Mizutani ; Yuki Senju ; Megumi Suzuki ; Eiichi Saitoh Année de publication : 2020 Article en page(s) : p. 288-295 Note générale : doi.org/10.1016/j.rehab.2019.09.004 Langues : Anglais (eng) Mots-clés : ICF Environmental factors Activities of daily living Résumé : Background
Modification of the home environment, together with rehabilitative interventions, is important for maximizing the level of functioning after an individual with disability undergoes rehabilitation in the hospital.
Objectives
We developed a simple screening scale – the home environment checklist (HEC) – to identify any mismatch between an individual's abilities and their home environment to help clinicians monitor the appropriateness of the home environment to which individuals with disability will be discharged. We also examined the psychometric properties of the HEC.
Methods
The HEC was developed by a multidisciplinary panel of rehabilitation experts using information routinely collected in rehabilitation clinics before discharge. The reliability of the checklist was assessed in 60 individuals undergoing rehabilitation. The inter-rater agreement and internal consistency of the scale were assessed by weighted kappa statistics and Cronbach's alpha, respectively. Rasch analysis was performed with 244 rehabilitation individuals to evaluate the internal construct validity, and the known-groups validity was confirmed by a comparison of the daily activity levels of 30 individuals with disabilities under rehabilitation to the HEC score.
Results
The HEC was developed as a simple, 10-item checklist. The weighted kappa statistics ranged from 0.73 to 0.93, indicating excellent inter-rater reliability. Cronbach's alpha was 0.92, indicating high internal consistency. Rasch analysis with a testlet approach on 3 subscales demonstrated a good fit with the Rasch model (χ2 = 13.2, P = 0.153), and the demonstrated unidimensionality and absence of differential item functioning supported the internal construct validity of the HEC. HEC scores were significantly different (P < .01) among individuals with disability and 3 levels of restrictions in their activities (no limitation, home-bound, and bed-bound), which demonstrates the known-groups validity of the HEC.
Conclusions
The HEC has good reliability and validity, which supports its utility in rehabilitation clinics.Permalink : ./index.php?lvl=notice_display&id=90863
in Annals of physical and rehabilitation medicine > Vol. 63, n°4 (Juillet 2020) . - p. 288-295[article] Development and assessment of a home environment checklist to evaluate mismatch between patients’ ability and home environment [texte imprimé] / Masahiko Mukaino ; Birgit Prodinger ; Yuki Okouchi ; Kouji Mizutani ; Yuki Senju ; Megumi Suzuki ; Eiichi Saitoh . - 2020 . - p. 288-295.
doi.org/10.1016/j.rehab.2019.09.004
Langues : Anglais (eng)
in Annals of physical and rehabilitation medicine > Vol. 63, n°4 (Juillet 2020) . - p. 288-295
Mots-clés : ICF Environmental factors Activities of daily living Résumé : Background
Modification of the home environment, together with rehabilitative interventions, is important for maximizing the level of functioning after an individual with disability undergoes rehabilitation in the hospital.
Objectives
We developed a simple screening scale – the home environment checklist (HEC) – to identify any mismatch between an individual's abilities and their home environment to help clinicians monitor the appropriateness of the home environment to which individuals with disability will be discharged. We also examined the psychometric properties of the HEC.
Methods
The HEC was developed by a multidisciplinary panel of rehabilitation experts using information routinely collected in rehabilitation clinics before discharge. The reliability of the checklist was assessed in 60 individuals undergoing rehabilitation. The inter-rater agreement and internal consistency of the scale were assessed by weighted kappa statistics and Cronbach's alpha, respectively. Rasch analysis was performed with 244 rehabilitation individuals to evaluate the internal construct validity, and the known-groups validity was confirmed by a comparison of the daily activity levels of 30 individuals with disabilities under rehabilitation to the HEC score.
Results
The HEC was developed as a simple, 10-item checklist. The weighted kappa statistics ranged from 0.73 to 0.93, indicating excellent inter-rater reliability. Cronbach's alpha was 0.92, indicating high internal consistency. Rasch analysis with a testlet approach on 3 subscales demonstrated a good fit with the Rasch model (χ2 = 13.2, P = 0.153), and the demonstrated unidimensionality and absence of differential item functioning supported the internal construct validity of the HEC. HEC scores were significantly different (P < .01) among individuals with disability and 3 levels of restrictions in their activities (no limitation, home-bound, and bed-bound), which demonstrates the known-groups validity of the HEC.
Conclusions
The HEC has good reliability and validity, which supports its utility in rehabilitation clinics.Permalink : ./index.php?lvl=notice_display&id=90863 Exemplaires (1)
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Exclu du prêtExploring the facilitators and barriers to shopping mall use by persons with disabilities and strategies for improvements: Perspectives from persons with disabilities, rehabilitation professionals and shopkeepers / SWAINE B. R. in Alter, Vol. 8, n°3 (Juillet / Septembre 2014)
[article]
Titre : Exploring the facilitators and barriers to shopping mall use by persons with disabilities and strategies for improvements: Perspectives from persons with disabilities, rehabilitation professionals and shopkeepers Titre original : Explorer les facilitateurs, les barrières et améliorations possibles pour la fréquentation des centres commerciaux par les personnes handicapées : le point de vue des personnes handicapées, des professionnels de la réadaptation et des commerçants Type de document : texte imprimé Auteurs : SWAINE B. R., Auteur Année de publication : 2014 Article en page(s) : p.217 - p.229 Langues : Français (fre) Mots-clés : Participation, Shopping Environmental factors ICF Disability Qualitative methods Participation Shopping Facteurs environnementaux CIF Handicap Méthodes qualitatives Résumé : Persons with disabilities face challenges which impact on their ability to accomplish daily activities such as moving around, communicating and fulfilling social roles. Social participation assumes individuals with disabilities live within their community and interact with others. Shopping malls are public spaces used by individuals for various reasons. Here, all components of the social and physical environment interact and have an impact on social participation. This exploratory and qualitative study provides a multi-perspective assessment of the usability, as well as of the environmental facilitators and obstacles to social participation in shopping malls. The results also suggest necessary improvements. We interviewed 15 persons with disabilities, 15 rehabilitation professionals and 9 shopkeepers. Participants viewed the mall as a multifunctional place for everyday use, but at times, also as a limiting place. Multiple facilitators and obstacles were identified; the most important were interaction with shopkeepers and the mall's design for mobility or wayfinding. All participants agreed shopkeeper training and an improved awareness of the needs of persons with disabilities would be beneficial. Multiple stakeholders’ perceptions provide a basis for further investigation about needed changes and their potential for making malls more welcoming and inclusive to all.
Les personnes handicapées rencontrent des défis dans la réalisation de leurs activités quotidiennes comme les déplacements ou la communication, et de leurs rôles sociaux. La participation sociale suppose que les personnes handicapées interagissent et vivent au sein de leur communauté. Les centres commerciaux sont des espaces publics utilisés par divers groupes, pour différentes raisons, où les composantes de l’environnement social et physique interagissent influençant la participation sociale des personnes handicapées. Cette étude qualitative exploratoire décrit, selon une perspective pluraliste, les usages, les facilitateurs et les obstacles environnementaux à la participation dans les centres commerciaux ainsi que les améliorations possibles. Nous avons rencontré 15 personnes handicapées, 15 professionnels en réadaptation et 9 commerçants. Les participants ont rapporté que le centre commercial était un lieu multifonctionnel au quotidien, mais aussi parfois restreignant. Plusieurs facilitateurs et obstacles ont été identifiés, notamment l’importance des interactions avec les commerçants, et des aménagements pour les déplacements et l’orientation. Tous les participants ont mentionné le besoin de formation des commerçants et de sensibilisation aux besoins des personnes handicapées. Le pluralisme des points de vue fournit une base pour l’étude plus approfondie des changements à apporter et de leur potentiel pour créer des centres commerciaux plus accueillant et inclusif pour tous.Permalink : ./index.php?lvl=notice_display&id=33825
in Alter > Vol. 8, n°3 (Juillet / Septembre 2014) . - p.217 - p.229[article] Exploring the facilitators and barriers to shopping mall use by persons with disabilities and strategies for improvements: Perspectives from persons with disabilities, rehabilitation professionals and shopkeepers = Explorer les facilitateurs, les barrières et améliorations possibles pour la fréquentation des centres commerciaux par les personnes handicapées : le point de vue des personnes handicapées, des professionnels de la réadaptation et des commerçants [texte imprimé] / SWAINE B. R., Auteur . - 2014 . - p.217 - p.229.
Langues : Français (fre)
in Alter > Vol. 8, n°3 (Juillet / Septembre 2014) . - p.217 - p.229
Mots-clés : Participation, Shopping Environmental factors ICF Disability Qualitative methods Participation Shopping Facteurs environnementaux CIF Handicap Méthodes qualitatives Résumé : Persons with disabilities face challenges which impact on their ability to accomplish daily activities such as moving around, communicating and fulfilling social roles. Social participation assumes individuals with disabilities live within their community and interact with others. Shopping malls are public spaces used by individuals for various reasons. Here, all components of the social and physical environment interact and have an impact on social participation. This exploratory and qualitative study provides a multi-perspective assessment of the usability, as well as of the environmental facilitators and obstacles to social participation in shopping malls. The results also suggest necessary improvements. We interviewed 15 persons with disabilities, 15 rehabilitation professionals and 9 shopkeepers. Participants viewed the mall as a multifunctional place for everyday use, but at times, also as a limiting place. Multiple facilitators and obstacles were identified; the most important were interaction with shopkeepers and the mall's design for mobility or wayfinding. All participants agreed shopkeeper training and an improved awareness of the needs of persons with disabilities would be beneficial. Multiple stakeholders’ perceptions provide a basis for further investigation about needed changes and their potential for making malls more welcoming and inclusive to all.
Les personnes handicapées rencontrent des défis dans la réalisation de leurs activités quotidiennes comme les déplacements ou la communication, et de leurs rôles sociaux. La participation sociale suppose que les personnes handicapées interagissent et vivent au sein de leur communauté. Les centres commerciaux sont des espaces publics utilisés par divers groupes, pour différentes raisons, où les composantes de l’environnement social et physique interagissent influençant la participation sociale des personnes handicapées. Cette étude qualitative exploratoire décrit, selon une perspective pluraliste, les usages, les facilitateurs et les obstacles environnementaux à la participation dans les centres commerciaux ainsi que les améliorations possibles. Nous avons rencontré 15 personnes handicapées, 15 professionnels en réadaptation et 9 commerçants. Les participants ont rapporté que le centre commercial était un lieu multifonctionnel au quotidien, mais aussi parfois restreignant. Plusieurs facilitateurs et obstacles ont été identifiés, notamment l’importance des interactions avec les commerçants, et des aménagements pour les déplacements et l’orientation. Tous les participants ont mentionné le besoin de formation des commerçants et de sensibilisation aux besoins des personnes handicapées. Le pluralisme des points de vue fournit une base pour l’étude plus approfondie des changements à apporter et de leur potentiel pour créer des centres commerciaux plus accueillant et inclusif pour tous.Permalink : ./index.php?lvl=notice_display&id=33825 Exemplaires (1)
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