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5 résultat(s) recherche sur le mot-clé 'health-related quality of life'
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Children With Celiac Disease: Health-Related Quality of Life and Leisure Participation / Meyer Sonya in American Journal of Occupational Therapy, Vol. 70/6 (Novembre-décembre 2016)
[article]
Titre : Children With Celiac Disease: Health-Related Quality of Life and Leisure Participation Type de document : texte imprimé Auteurs : Meyer Sonya ; Sara Rosenblum Année de publication : 2016 Article en page(s) : p. 7006220010p1-7006220010p8 Langues : Anglais (eng) Mots-clés : celiac disease child health-related quality of life parent, food Résumé : OBJECTIVE. We compared health-related quality-of-life (HRQOL) perceptions of children with celiac disease (CD) with those of their parents to determine whether their leisure participation differs from that of children without CD and whether relationships exist between leisure participation and HRQOL.
METHOD. Children with CD and their parents completed a disease-specific HRQOL self-report questionnaire, the Celiac Disease DUX. These children and matched controls without CD completed the Children’s Leisure Assessment Scale (CLASS).
RESULTS. Parents perceived HRQOL significantly more negatively than did children. No significant group differences were found in leisure participation. However, specific CLASS food-related activities and HRQOL significantly correlated.
CONCLUSION. Hearing the child’s voice in addition to the parents’ is important in determining the HRQOL of children with a chronic condition. Findings contribute to understanding of CD in the context of participation and well-being and can lead to development of occupational performance–based assessments and interventions for children with CD.Permalink : ./index.php?lvl=notice_display&id=47056
in American Journal of Occupational Therapy > Vol. 70/6 (Novembre-décembre 2016) . - p. 7006220010p1-7006220010p8[article] Children With Celiac Disease: Health-Related Quality of Life and Leisure Participation [texte imprimé] / Meyer Sonya ; Sara Rosenblum . - 2016 . - p. 7006220010p1-7006220010p8.
Langues : Anglais (eng)
in American Journal of Occupational Therapy > Vol. 70/6 (Novembre-décembre 2016) . - p. 7006220010p1-7006220010p8
Mots-clés : celiac disease child health-related quality of life parent, food Résumé : OBJECTIVE. We compared health-related quality-of-life (HRQOL) perceptions of children with celiac disease (CD) with those of their parents to determine whether their leisure participation differs from that of children without CD and whether relationships exist between leisure participation and HRQOL.
METHOD. Children with CD and their parents completed a disease-specific HRQOL self-report questionnaire, the Celiac Disease DUX. These children and matched controls without CD completed the Children’s Leisure Assessment Scale (CLASS).
RESULTS. Parents perceived HRQOL significantly more negatively than did children. No significant group differences were found in leisure participation. However, specific CLASS food-related activities and HRQOL significantly correlated.
CONCLUSION. Hearing the child’s voice in addition to the parents’ is important in determining the HRQOL of children with a chronic condition. Findings contribute to understanding of CD in the context of participation and well-being and can lead to development of occupational performance–based assessments and interventions for children with CD.Permalink : ./index.php?lvl=notice_display&id=47056 Exemplaires (1)
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Exclu du prêtMaintaining health-related quality of life from 85 to 93 years of age despite decreased functional ability / Maria M. Johansson in The British Journal of Occupational Therapy, Vol. 82 Issue 6 (Juin 2019)
[article]
Titre : Maintaining health-related quality of life from 85 to 93 years of age despite decreased functional ability Type de document : texte imprimé Auteurs : Maria M. Johansson ; Jan Marcusson ; Ewa Wressle Année de publication : 2019 Article en page(s) : p. 348-356 Note générale : doi.org/10.1177/0308022619830261 Langues : Anglais (eng) Mots-clés : Health-related quality of life daily living elderly occupational therapy Résumé : Introduction
The ‘oldest-old’ is the most rapidly growing age group in Sweden and in the western world. This group is known to be at great risk of increased functional dependency and the need for help in their daily lives. The aim of this research was to examine how the oldest-old change over time regarding health-related quality of life, cognition, depression and ability to perform activities of daily living and investigate what factors explain health-related quality of life at age 85 and 93 years.
Methods
In this study, 60 individuals from the Swedish Elderly in Linköping Screening Assessment study were followed from age 85 to 93 years. Measurements used were EQ-5D, Geriatric Depression Scale, Mini Mental State Examination and ability to perform activities of daily living. Nonparametric statistics and regression analyses were used.
Results
Although the individuals had increased mobility problems, decreased ability to manage activities of daily living, and thus had increased need of assistance, they scored their health-related quality of life at age 93 years at almost the same level as at age 85 years. No depression and low dependence in activities of daily living speaks in favour of higher health-related quality of life.
Conclusions
Health-related quality of life can be maintained during ageing despite decreased functional ability and increased need of assistance in daily life.Permalink : ./index.php?lvl=notice_display&id=84442
in The British Journal of Occupational Therapy > Vol. 82 Issue 6 (Juin 2019) . - p. 348-356[article] Maintaining health-related quality of life from 85 to 93 years of age despite decreased functional ability [texte imprimé] / Maria M. Johansson ; Jan Marcusson ; Ewa Wressle . - 2019 . - p. 348-356.
doi.org/10.1177/0308022619830261
Langues : Anglais (eng)
in The British Journal of Occupational Therapy > Vol. 82 Issue 6 (Juin 2019) . - p. 348-356
Mots-clés : Health-related quality of life daily living elderly occupational therapy Résumé : Introduction
The ‘oldest-old’ is the most rapidly growing age group in Sweden and in the western world. This group is known to be at great risk of increased functional dependency and the need for help in their daily lives. The aim of this research was to examine how the oldest-old change over time regarding health-related quality of life, cognition, depression and ability to perform activities of daily living and investigate what factors explain health-related quality of life at age 85 and 93 years.
Methods
In this study, 60 individuals from the Swedish Elderly in Linköping Screening Assessment study were followed from age 85 to 93 years. Measurements used were EQ-5D, Geriatric Depression Scale, Mini Mental State Examination and ability to perform activities of daily living. Nonparametric statistics and regression analyses were used.
Results
Although the individuals had increased mobility problems, decreased ability to manage activities of daily living, and thus had increased need of assistance, they scored their health-related quality of life at age 93 years at almost the same level as at age 85 years. No depression and low dependence in activities of daily living speaks in favour of higher health-related quality of life.
Conclusions
Health-related quality of life can be maintained during ageing despite decreased functional ability and increased need of assistance in daily life.Permalink : ./index.php?lvl=notice_display&id=84442 Exemplaires (1)
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Exclu du prêtPredictors of health-related quality of life after non-catastrophic injury sustained in a road traffic crash / Bamini Gopinath in Annals of physical and rehabilitation medicine, Vol. 63, n°4 (Juillet 2020)
[article]
Titre : Predictors of health-related quality of life after non-catastrophic injury sustained in a road traffic crash Type de document : texte imprimé Auteurs : Bamini Gopinath ; Jagnoor Jagnoor ; Annette Kifley ; Michael Dinh ; Ashley Craig Année de publication : 2020 Article en page(s) : p. 280-287 Note générale : doi.org/10.1016/j.rehab.2019.10.001 Langues : Anglais (eng) Mots-clés : Health-related quality of life Non-catastrophic injury Road traffic crash Cohort study. Résumé : Background
Health-related quality of life (HRQoL) is an important patient-reported outcome that warrants greater attention in individuals who sustained a non-catastrophic injury in a road traffic crash. Additional robust data on HRQoL outcomes after a non-catastrophic injury are needed to effectively identify potential targets for studies of tertiary prevention of poor recovery after a crash.
Objective
We assessed the association between non-catastrophic road traffic crash injuries and HRQoL and factors that independently affect long-term HRQoL.
Methods
In this inception cohort study, injured participants (≥ 17 years old) were identified from various sources including hospital emergency departments by a medical examination by a registered healthcare professional in New South Wales (Australia) and followed up after 12 months. HRQoL was measured by the European Quality of Life–5 Dimensions (EQ-5D-3L) and Medical Outcomes Survey Short Form 12 items (SF-12). A range of socio-demographic, pre-injury health, psychological, and injury-related factors were considered potential predictors of HRQoL in regression analyses.
Results
Among 2019 individuals identified, 1201 (59.5%) were followed up after 12 months. HRQoL significantly improved between baseline and 12-month follow-up: EQ-5D-3L summary score (0.41-unit difference); SF-12 physical component summary score (PCS; 13.6-unit difference) and mental component summary score (MCS; 3.5-unit difference). Over 12 months, HRQoL score was lower for people claiming compensation than others (P < 0.0001). Key predictors of better 12-month EQ-5D-3L summary score and visual analogue scale score for pain were age, not claiming compensation, reduced body mass index, less pain severity, less pain-related disability, and less general psychological distress. Significant predictors of SF-12 PCS score were injury to the neck (P = 0.02) or head or face (P = 0.01), being a driver or passenger at the time of the crash (P < 0.0001), hospital admission (P < 0.0001) and pain severity (P < 0.0001). Baseline variables associated with 12-month SF-12 MCS scores were head or face injury (P = 0.02), pre-injury health (P = 0.04), pre-injury psychological conditions (P = 0.04), trauma-related distress (P = 0.0002) and general psychological distress (P < 0.0001).
Conclusions
A wide spectrum of biopsychosocial factors contribute to HRQoL after a road traffic crash injury. These epidemiological data are potentially important because they could identify potential targets for studies of tertiary prevention of persistently poor HRQoL after such an injury.Permalink : ./index.php?lvl=notice_display&id=90824
in Annals of physical and rehabilitation medicine > Vol. 63, n°4 (Juillet 2020) . - p. 280-287[article] Predictors of health-related quality of life after non-catastrophic injury sustained in a road traffic crash [texte imprimé] / Bamini Gopinath ; Jagnoor Jagnoor ; Annette Kifley ; Michael Dinh ; Ashley Craig . - 2020 . - p. 280-287.
doi.org/10.1016/j.rehab.2019.10.001
Langues : Anglais (eng)
in Annals of physical and rehabilitation medicine > Vol. 63, n°4 (Juillet 2020) . - p. 280-287
Mots-clés : Health-related quality of life Non-catastrophic injury Road traffic crash Cohort study. Résumé : Background
Health-related quality of life (HRQoL) is an important patient-reported outcome that warrants greater attention in individuals who sustained a non-catastrophic injury in a road traffic crash. Additional robust data on HRQoL outcomes after a non-catastrophic injury are needed to effectively identify potential targets for studies of tertiary prevention of poor recovery after a crash.
Objective
We assessed the association between non-catastrophic road traffic crash injuries and HRQoL and factors that independently affect long-term HRQoL.
Methods
In this inception cohort study, injured participants (≥ 17 years old) were identified from various sources including hospital emergency departments by a medical examination by a registered healthcare professional in New South Wales (Australia) and followed up after 12 months. HRQoL was measured by the European Quality of Life–5 Dimensions (EQ-5D-3L) and Medical Outcomes Survey Short Form 12 items (SF-12). A range of socio-demographic, pre-injury health, psychological, and injury-related factors were considered potential predictors of HRQoL in regression analyses.
Results
Among 2019 individuals identified, 1201 (59.5%) were followed up after 12 months. HRQoL significantly improved between baseline and 12-month follow-up: EQ-5D-3L summary score (0.41-unit difference); SF-12 physical component summary score (PCS; 13.6-unit difference) and mental component summary score (MCS; 3.5-unit difference). Over 12 months, HRQoL score was lower for people claiming compensation than others (P < 0.0001). Key predictors of better 12-month EQ-5D-3L summary score and visual analogue scale score for pain were age, not claiming compensation, reduced body mass index, less pain severity, less pain-related disability, and less general psychological distress. Significant predictors of SF-12 PCS score were injury to the neck (P = 0.02) or head or face (P = 0.01), being a driver or passenger at the time of the crash (P < 0.0001), hospital admission (P < 0.0001) and pain severity (P < 0.0001). Baseline variables associated with 12-month SF-12 MCS scores were head or face injury (P = 0.02), pre-injury health (P = 0.04), pre-injury psychological conditions (P = 0.04), trauma-related distress (P = 0.0002) and general psychological distress (P < 0.0001).
Conclusions
A wide spectrum of biopsychosocial factors contribute to HRQoL after a road traffic crash injury. These epidemiological data are potentially important because they could identify potential targets for studies of tertiary prevention of persistently poor HRQoL after such an injury.Permalink : ./index.php?lvl=notice_display&id=90824 Exemplaires (1)
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Exclu du prêtQuality of life and satisfaction after multilevel surgery in cerebral palsy: Confronting the experience of children and their parents / A. STEPHAN-CARLIER in Annals of physical and rehabilitation medicine, Vol. 57, n°9-10 (Décembre 2014)
[article]
Titre : Quality of life and satisfaction after multilevel surgery in cerebral palsy: Confronting the experience of children and their parents Titre original : Comparaison de la satisfaction et qualité de vie de l’enfant paralysé cérébral marchant et de sa famille après chirurgie multi-étagée Type de document : texte imprimé Auteurs : A. STEPHAN-CARLIER, Auteur ; Julia FACIONE, Auteur Année de publication : 2014 Article en page(s) : p.640-652 Langues : Français (fre) Mots-clés : Health-related quality of life Satisfaction Cerebral Palsy (CP) Ambulatory children Single-event multilevel surgery (SEMS) Qualité de vie Paralysie cérébrale (PC) Enfants marchants Chirurgie multi-étagée Résumé : Objectives
If the benefits of single-event multilevel surgery (SEMS) in ambulatory children with cerebral palsy have already been validated, especially in terms of functional outcomes, fewer studies have evaluated SEMS in terms of quality of life and satisfaction with surgical outcomes, especially pertaining to the opinions of children and their family. The objectives of this study were to confront the perceptions of parents and the experience of their operated children in terms of quality of life and surgical outcomes.
Materials and methods
This was an observational, descriptive, single-center study conducted in a regional Pediatric Physical Medicine and Rehabilitation (PM&R) center, which is considered a reference center in this region of France. The subjects recruited were ambulatory children with cerebral palsy (CP) who had SEMS between 2009 and 2011, and one of their parents. The specific “child” and “parent” CP-related modules of the DISABKIDS questionnaire were used to assess these children's quality of life post-surgery. Perceptions of parents and children regarding gait evolution and satisfaction with surgical outcomes were analyzed via a questionnaire developed by the author. Regarding quality of life and surgical outcomes, the correlation between the perception of parents and experience of children was estimated using the intraclass correlation coefficient (ICC) or prevalence-adjusted bias-adjusted kappa values (PABAK).
Results
Twelve children (83% of them boys) and their parents participated in the study. For the DISABKIDS questionnaire, a moderate correlation was found regarding functional impact (ICC=0.58; P<0.0178) but a high correlation was reported for the communication item of the questionnaire (ICC=0.73; P=0.0025). Regarding satisfaction with surgical outcomes, results showed a good correlation (PABAK=0.64).
Conclusion
Concerning quality of life and satisfaction with surgical outcomes, our study showed a good or even high correlation between parents’ perceptions and their child's experience. It is however essential to privilege the child's opinion whenever possible.
Objectif
Alors que les bénéfices de la chirurgie multi-étagée chez l’enfant paralysé cérébral marchant sont connus notamment en termes de résultats fonctionnels, ils le sont moins en termes de qualité de vie et satisfaction vis-à-vis de ce type de chirurgie, notamment en prenant en compte à la fois le point de vue de l’enfant et du parent. L’objectif était d’évaluer le niveau de concordance entre la perception des parents et celles des enfants opérés, concernant la qualité de vie des enfants et la satisfaction après cette chirurgie.
Matériels et méthodes
Étude observationnelle à visée descriptive monocentrique, réalisée dans un centre de médecine physique et de réadaptation pédiatrique de référence au niveau régional, auprès d’enfants paralysés cérébraux marchants ayant bénéficié d’une chirurgie multi-étagée entre 2009 et 2011, et un de leur parent. Les versions « enfant » et « parent » du module spécifique à la paralysie cérébrale (PC) du questionnaire DISABKIDS ont été utilisées pour évaluer la qualité de vie des enfants. La perception de l’évolution de la marche et la satisfaction après chirurgie a été évaluée par un questionnaire rédigé par l’auteur. La concordance parent–enfant a été estimée par le coefficient de corrélation intraclasse (CCI) ou le coefficient de kappa ajusté sur la prévalence (PABAK).
Résultats
Douze enfants (83 % de garçons) et leur parent ont participé. Une concordance modérée entre les réponses des parents et des enfants au DISABKIDS était retrouvée pour le domaine impact fonctionnel (CCI=0,58 ; p<0,0178) et importante pour le domaine communication (CCI=0,73 ; p=0,0025). Concernant la satisfaction, la concordance était jugée bonne (PABAK=0,64).
Conclusion
En ce qui concerne l’évaluation de la qualité de vie et la satisfaction, un bon, voire excellent niveau de concordance parent–enfant était observé. Il est important de considérer l’avis des enfants aussi souvent que possible.Permalink : ./index.php?lvl=notice_display&id=34547
in Annals of physical and rehabilitation medicine > Vol. 57, n°9-10 (Décembre 2014) . - p.640-652[article] Quality of life and satisfaction after multilevel surgery in cerebral palsy: Confronting the experience of children and their parents = Comparaison de la satisfaction et qualité de vie de l’enfant paralysé cérébral marchant et de sa famille après chirurgie multi-étagée [texte imprimé] / A. STEPHAN-CARLIER, Auteur ; Julia FACIONE, Auteur . - 2014 . - p.640-652.
Langues : Français (fre)
in Annals of physical and rehabilitation medicine > Vol. 57, n°9-10 (Décembre 2014) . - p.640-652
Mots-clés : Health-related quality of life Satisfaction Cerebral Palsy (CP) Ambulatory children Single-event multilevel surgery (SEMS) Qualité de vie Paralysie cérébrale (PC) Enfants marchants Chirurgie multi-étagée Résumé : Objectives
If the benefits of single-event multilevel surgery (SEMS) in ambulatory children with cerebral palsy have already been validated, especially in terms of functional outcomes, fewer studies have evaluated SEMS in terms of quality of life and satisfaction with surgical outcomes, especially pertaining to the opinions of children and their family. The objectives of this study were to confront the perceptions of parents and the experience of their operated children in terms of quality of life and surgical outcomes.
Materials and methods
This was an observational, descriptive, single-center study conducted in a regional Pediatric Physical Medicine and Rehabilitation (PM&R) center, which is considered a reference center in this region of France. The subjects recruited were ambulatory children with cerebral palsy (CP) who had SEMS between 2009 and 2011, and one of their parents. The specific “child” and “parent” CP-related modules of the DISABKIDS questionnaire were used to assess these children's quality of life post-surgery. Perceptions of parents and children regarding gait evolution and satisfaction with surgical outcomes were analyzed via a questionnaire developed by the author. Regarding quality of life and surgical outcomes, the correlation between the perception of parents and experience of children was estimated using the intraclass correlation coefficient (ICC) or prevalence-adjusted bias-adjusted kappa values (PABAK).
Results
Twelve children (83% of them boys) and their parents participated in the study. For the DISABKIDS questionnaire, a moderate correlation was found regarding functional impact (ICC=0.58; P<0.0178) but a high correlation was reported for the communication item of the questionnaire (ICC=0.73; P=0.0025). Regarding satisfaction with surgical outcomes, results showed a good correlation (PABAK=0.64).
Conclusion
Concerning quality of life and satisfaction with surgical outcomes, our study showed a good or even high correlation between parents’ perceptions and their child's experience. It is however essential to privilege the child's opinion whenever possible.
Objectif
Alors que les bénéfices de la chirurgie multi-étagée chez l’enfant paralysé cérébral marchant sont connus notamment en termes de résultats fonctionnels, ils le sont moins en termes de qualité de vie et satisfaction vis-à-vis de ce type de chirurgie, notamment en prenant en compte à la fois le point de vue de l’enfant et du parent. L’objectif était d’évaluer le niveau de concordance entre la perception des parents et celles des enfants opérés, concernant la qualité de vie des enfants et la satisfaction après cette chirurgie.
Matériels et méthodes
Étude observationnelle à visée descriptive monocentrique, réalisée dans un centre de médecine physique et de réadaptation pédiatrique de référence au niveau régional, auprès d’enfants paralysés cérébraux marchants ayant bénéficié d’une chirurgie multi-étagée entre 2009 et 2011, et un de leur parent. Les versions « enfant » et « parent » du module spécifique à la paralysie cérébrale (PC) du questionnaire DISABKIDS ont été utilisées pour évaluer la qualité de vie des enfants. La perception de l’évolution de la marche et la satisfaction après chirurgie a été évaluée par un questionnaire rédigé par l’auteur. La concordance parent–enfant a été estimée par le coefficient de corrélation intraclasse (CCI) ou le coefficient de kappa ajusté sur la prévalence (PABAK).
Résultats
Douze enfants (83 % de garçons) et leur parent ont participé. Une concordance modérée entre les réponses des parents et des enfants au DISABKIDS était retrouvée pour le domaine impact fonctionnel (CCI=0,58 ; p<0,0178) et importante pour le domaine communication (CCI=0,73 ; p=0,0025). Concernant la satisfaction, la concordance était jugée bonne (PABAK=0,64).
Conclusion
En ce qui concerne l’évaluation de la qualité de vie et la satisfaction, un bon, voire excellent niveau de concordance parent–enfant était observé. Il est important de considérer l’avis des enfants aussi souvent que possible.Permalink : ./index.php?lvl=notice_display&id=34547 Exemplaires (1)
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Exclu du prêtPatients’ outcome expectations and their fulfilment in multidisciplinary stroke rehabilitation / Iris F. Groeneveld in Annals of physical and rehabilitation medicine, Vol. 62, n°1 (Janvier 2019)
[article]
Titre : Patients’ outcome expectations and their fulfilment in multidisciplinary stroke rehabilitation Type de document : texte imprimé Auteurs : Iris F. Groeneveld ; Paulien Goossens ; Inke van Braak ; et al. Année de publication : 2019 Article en page(s) : p. 21-27 Note générale : Doi : 10.1016/j.rehab.2018.05.1321 Langues : Anglais (eng) Mots-clés : Stroke Rehabilitation Expectations Health-related quality of life Résumé : Highlights
Patients’ expectations of inpatient stroke rehabilitation are relatively high.
For half of the patients, expectations are fulfilled.
An improvement in quality of life enhances the fulfilment of expectations.
Management of expectations regarding stroke rehabilitation is important.
Abstract
Background
Patients’ expectations of the outcomes of rehabilitation may influence the outcomes and satisfaction with treatment.
Objectives
For stroke patients in multidisciplinary rehabilitation, we aimed to explore patients’ outcome expectations and their fulfilment as well as determinants.
Methods
The Stroke Cohort Outcomes of REhabilitation (SCORE) study included consecutive stroke patients admitted to an inpatient rehabilitation facility after hospitalisation. Outcome expectations were assessed at the start of rehabilitation (admission) by using the three-item Expectancy scale (sum score range 3–27) of the Credibility/Expectancy Questionnaire (CEQ). After rehabilitation, patients answered the same questions formulated in the past tense to assess fulfilment of expectations. Baseline patient characteristics were recorded and health-related quality of life (EQ-5D) was measured at baseline and after rehabilitation. The number of patients with expectations unfulfilled or fulfilled or exceeded was computed by subtracting the admission and discharge CEQ Expectancy scores. Multivariable regression analysis was used to determine the factors associated with outcome expectations and their fulfilment, estimating odds ratios (ORs) and 95% confidence intervals (CIs).
Results
We included 165 patients (96 males [58.2%], mean (SD) age 60.2 years [12.7]) who completed the CEQ Expectancy instrument at admission (median score 21.6, interquartile range [IQR] 17.0–24.0); 79 completed it both at admission (median score 20.6, IQR 16.6–24.4) and follow-up (median score 20.0, IQR 16.4–22.8). For 40 (50.6%) patients, expectations of therapy were fulfilled or exceeded. No patient characteristic at admission was associated with baseline CEQ Expectancy score. Odds of expectation fulfilment were associated with low expectations at admission (OR 0.70, 95% CI 0.60–0.83) and improved EQ-5D score (OR 1.35, 95% CI 1.04–0.75).
Conclusions
In half of the stroke patients in multidisciplinary rehabilitation, expectations were fulfilled or exceeded, most likely in patients with low expectations at admission and with improved health-related quality of life. More research into the role of health professionals regarding the measurement, shaping and management of outcome expectations is needed.Permalink : ./index.php?lvl=notice_display&id=82401
in Annals of physical and rehabilitation medicine > Vol. 62, n°1 (Janvier 2019) . - p. 21-27[article] Patients’ outcome expectations and their fulfilment in multidisciplinary stroke rehabilitation [texte imprimé] / Iris F. Groeneveld ; Paulien Goossens ; Inke van Braak ; et al. . - 2019 . - p. 21-27.
Doi : 10.1016/j.rehab.2018.05.1321
Langues : Anglais (eng)
in Annals of physical and rehabilitation medicine > Vol. 62, n°1 (Janvier 2019) . - p. 21-27
Mots-clés : Stroke Rehabilitation Expectations Health-related quality of life Résumé : Highlights
Patients’ expectations of inpatient stroke rehabilitation are relatively high.
For half of the patients, expectations are fulfilled.
An improvement in quality of life enhances the fulfilment of expectations.
Management of expectations regarding stroke rehabilitation is important.
Abstract
Background
Patients’ expectations of the outcomes of rehabilitation may influence the outcomes and satisfaction with treatment.
Objectives
For stroke patients in multidisciplinary rehabilitation, we aimed to explore patients’ outcome expectations and their fulfilment as well as determinants.
Methods
The Stroke Cohort Outcomes of REhabilitation (SCORE) study included consecutive stroke patients admitted to an inpatient rehabilitation facility after hospitalisation. Outcome expectations were assessed at the start of rehabilitation (admission) by using the three-item Expectancy scale (sum score range 3–27) of the Credibility/Expectancy Questionnaire (CEQ). After rehabilitation, patients answered the same questions formulated in the past tense to assess fulfilment of expectations. Baseline patient characteristics were recorded and health-related quality of life (EQ-5D) was measured at baseline and after rehabilitation. The number of patients with expectations unfulfilled or fulfilled or exceeded was computed by subtracting the admission and discharge CEQ Expectancy scores. Multivariable regression analysis was used to determine the factors associated with outcome expectations and their fulfilment, estimating odds ratios (ORs) and 95% confidence intervals (CIs).
Results
We included 165 patients (96 males [58.2%], mean (SD) age 60.2 years [12.7]) who completed the CEQ Expectancy instrument at admission (median score 21.6, interquartile range [IQR] 17.0–24.0); 79 completed it both at admission (median score 20.6, IQR 16.6–24.4) and follow-up (median score 20.0, IQR 16.4–22.8). For 40 (50.6%) patients, expectations of therapy were fulfilled or exceeded. No patient characteristic at admission was associated with baseline CEQ Expectancy score. Odds of expectation fulfilment were associated with low expectations at admission (OR 0.70, 95% CI 0.60–0.83) and improved EQ-5D score (OR 1.35, 95% CI 1.04–0.75).
Conclusions
In half of the stroke patients in multidisciplinary rehabilitation, expectations were fulfilled or exceeded, most likely in patients with low expectations at admission and with improved health-related quality of life. More research into the role of health professionals regarding the measurement, shaping and management of outcome expectations is needed.Permalink : ./index.php?lvl=notice_display&id=82401 Exemplaires (1)
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