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Special Issue: Neurological conditions (II) / Marcia Finlayson in The British Journal of Occupational Therapy, Vol.81 Issue 2 (February 2018)

Public ISBD [article]  inThe British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 63-64 Titre : Special Issue: Neurological conditions (II) Type de document : texte imprimé Auteurs : Marcia Finlayson Année de publication : 2018 Article en page(s) : p. 63-64 Langues : Anglais (eng) Mots-clés : ergothérapie  neurologie Résumé : When the call for submissions for a BJOT special issue on neurological conditions was announced, we hoped for a strong response, and possibly enough high-quality articles for a two-part issue. In fact, we had more than enough accepted articles for two parts, and will also include some others in later issues of the journal. The evident interest in the topic and the quality of submissions received is testament to the potential for occupational therapy’s contribution to the lives of people with neurological conditions and to the kind of care that they receive. Permalink : ./index.php?lvl=notice_display&id=57833 [article] Special Issue: Neurological conditions (II) [texte imprimé] / Marcia Finlayson . - 2018 . - p. 63-64. Langues : Anglais (eng) in The British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 63-64 Mots-clés : ergothérapie  neurologie Résumé : When the call for submissions for a BJOT special issue on neurological conditions was announced, we hoped for a strong response, and possibly enough high-quality articles for a two-part issue. In fact, we had more than enough accepted articles for two parts, and will also include some others in later issues of the journal. The evident interest in the topic and the quality of submissions received is testament to the potential for occupational therapy’s contribution to the lives of people with neurological conditions and to the kind of care that they receive. Permalink : ./index.php?lvl=notice_display&id=57833

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Developmental coordination disorder is more than a motor problem: Children describe the impact of daily struggles on their quality of life / Jill G. Zwicker in The British Journal of Occupational Therapy, Vol.81 Issue 2 (February 2018)

Public ISBD [article]  inThe British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 65-73 Titre : Developmental coordination disorder is more than a motor problem: Children describe the impact of daily struggles on their quality of life Type de document : texte imprimé Auteurs : Jill G. Zwicker ; Melinda Suto ; Susan R. Harris ; [et al...] Année de publication : 2018 Article en page(s) : p. 65-73 Langues : Anglais (eng) Mots-clés : ergothérapie  coordination motrice  enfant  qualité de vie Résumé : Introduction Affecting 5–6% of children, developmental coordination disorder is a neurodevelopmental disorder characterized by poor motor coordination and difficulty learning motor skills. Although quantitative studies have suggested that children with developmental coordination disorder experience reduced quality of life, no known qualitative studies have reported what daily life is like from their perspective. Method Guided by an inductive realistic approach and using semi-structured, individual interviews, 13 children (8–12 years) were asked to describe what life is like in their own words. Three researchers coded interviews manually to identify relevant content. An experienced qualitative researcher conducted a second, in-depth thematic analysis using NVivo to identify patterns and themes. Findings Two themes – milestones as millstones and the perils of printing – illuminated participants’ challenges in completing everyday activities at home and at school. The third theme – more than a motor problem – revealed the social and emotional impact of these struggles and from being excluded from play. The fourth theme – coping strategies – described their efforts to be resilient. Conclusion Parents, educators, physicians, and therapists working with children with developmental coordination disorder must recognize how their quality of life is affected by the physical and emotional toll of their efforts to participate successfully in daily activities. Permalink : ./index.php?lvl=notice_display&id=57834 [article] Developmental coordination disorder is more than a motor problem: Children describe the impact of daily struggles on their quality of life [texte imprimé] / Jill G. Zwicker ; Melinda Suto ; Susan R. Harris ; [et al...] . - 2018 . - p. 65-73. Langues : Anglais (eng) in The British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 65-73 Mots-clés : ergothérapie  coordination motrice  enfant  qualité de vie Résumé : Introduction Affecting 5–6% of children, developmental coordination disorder is a neurodevelopmental disorder characterized by poor motor coordination and difficulty learning motor skills. Although quantitative studies have suggested that children with developmental coordination disorder experience reduced quality of life, no known qualitative studies have reported what daily life is like from their perspective. Method Guided by an inductive realistic approach and using semi-structured, individual interviews, 13 children (8–12 years) were asked to describe what life is like in their own words. Three researchers coded interviews manually to identify relevant content. An experienced qualitative researcher conducted a second, in-depth thematic analysis using NVivo to identify patterns and themes. Findings Two themes – milestones as millstones and the perils of printing – illuminated participants’ challenges in completing everyday activities at home and at school. The third theme – more than a motor problem – revealed the social and emotional impact of these struggles and from being excluded from play. The fourth theme – coping strategies – described their efforts to be resilient. Conclusion Parents, educators, physicians, and therapists working with children with developmental coordination disorder must recognize how their quality of life is affected by the physical and emotional toll of their efforts to participate successfully in daily activities. Permalink : ./index.php?lvl=notice_display&id=57834

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Measuring changes in functional ability in older children and young people with acquired brain injury using the UK FIM + FAM / Dayla Austin in The British Journal of Occupational Therapy, Vol.81 Issue 2 (February 2018)

Public ISBD [article]  inThe British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 74-81 Titre : Measuring changes in functional ability in older children and young people with acquired brain injury using the UK FIM + FAM Type de document : texte imprimé Auteurs : Dayla Austin ; Tai Frater ; Lorna Wales ; Carolyn Dunford Année de publication : 2018 Article en page(s) : p. 74-81 Langues : Anglais (eng) Mots-clés : ergothérapie  évaluation  enfant  adulte  traumatisme cranien Résumé : Introduction There is a need for validated and responsive measurement tools to demonstrate changes in functional ability. Existing outcome measurement tools have significant limitations for children and young people with acquired brain injury (ABI). Aim This study examines the potential of the UK Functional Independence Measure + Functional Assessment Measure (UK FIM + FAM) to detect clinical change in older children and young people with ABI. Method This is a secondary retrospective pretest–post test analysis of 72 children and young people age 8–17 years. Internal responsiveness was examined using Wilcoxon signed-rank tests and effect sizes indices; external responsiveness was examined in relation to the Neurological Impairment Scale (NIS) using Spearman’s correlation coefficient. Results Highly significant changes were detected from admission to discharge on motor, cognitive and total UK FIM + FAM scores (p < 0.001). Medium to large effect sizes were found on the total scale indicating good internal responsiveness. There was a significant, negative correlation between UK FIM + FAM change scores and NIS change scores (p < 0.01) indicating good external responsiveness. Conclusion The UK FIM + FAM was able to detect clinically meaningful change in functional ability in children and young people with ABI over 8 years. Further validity and reliability must be established before recommending its use in this client group. Permalink : ./index.php?lvl=notice_display&id=57835 [article] Measuring changes in functional ability in older children and young people with acquired brain injury using the UK FIM + FAM [texte imprimé] / Dayla Austin ; Tai Frater ; Lorna Wales ; Carolyn Dunford . - 2018 . - p. 74-81. Langues : Anglais (eng) in The British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 74-81 Mots-clés : ergothérapie  évaluation  enfant  adulte  traumatisme cranien Résumé : Introduction There is a need for validated and responsive measurement tools to demonstrate changes in functional ability. Existing outcome measurement tools have significant limitations for children and young people with acquired brain injury (ABI). Aim This study examines the potential of the UK Functional Independence Measure + Functional Assessment Measure (UK FIM + FAM) to detect clinical change in older children and young people with ABI. Method This is a secondary retrospective pretest–post test analysis of 72 children and young people age 8–17 years. Internal responsiveness was examined using Wilcoxon signed-rank tests and effect sizes indices; external responsiveness was examined in relation to the Neurological Impairment Scale (NIS) using Spearman’s correlation coefficient. Results Highly significant changes were detected from admission to discharge on motor, cognitive and total UK FIM + FAM scores (p < 0.001). Medium to large effect sizes were found on the total scale indicating good internal responsiveness. There was a significant, negative correlation between UK FIM + FAM change scores and NIS change scores (p < 0.01) indicating good external responsiveness. Conclusion The UK FIM + FAM was able to detect clinically meaningful change in functional ability in children and young people with ABI over 8 years. Further validity and reliability must be established before recommending its use in this client group. Permalink : ./index.php?lvl=notice_display&id=57835

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Understanding and living with multiple sclerosis fatigue / Merrill Turpin in The British Journal of Occupational Therapy, Vol.81 Issue 2 (February 2018)

Public ISBD [article]  inThe British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 82-89 Titre : Understanding and living with multiple sclerosis fatigue Type de document : texte imprimé Auteurs : Merrill Turpin ; Georgina Kerr ; Hannah Gullo ; [et al...] Année de publication : 2018 Article en page(s) : p. 82-89 Langues : Anglais (eng) Mots-clés : ergothérapie  sclérose en plaques  fatigue  phénoménologie Résumé : Introduction Fatigue substantially affects the lives of many people with multiple sclerosis. This study aimed to further our understanding of the experience of living with multiple sclerosis fatigue by exploring how people became aware of and understood their multiple sclerosis fatigue and how they accommodate it in their daily lives. Method The study used an existential approach to thematic analysis. Thirteen in-depth, semi-structured interviews with people who experienced multiple sclerosis fatigue were conducted and analysed. Results Participants developed an understanding of multiple sclerosis fatigue through gaining awareness of its effect on their lives, seeking information themselves and being informed by health professionals. Participants described how they began to understand the effect of fatigue in their lives and make decisions about how to accommodate it. They discussed the challenges associated with helping others to understand their multiple sclerosis fatigue. Conclusion Lay and expert explanations, the phenomenological notions of lived experience, self-identity and embodiment and stigma associated with invisible disability were useful concepts for understanding the results. Clinicians should consider these concepts when supporting people with multiple sclerosis fatigue to understand the effect of fatigue in their daily lives and use fatigue management strategies to make effective lifestyle changes to accommodate it. Permalink : ./index.php?lvl=notice_display&id=57836 [article] Understanding and living with multiple sclerosis fatigue [texte imprimé] / Merrill Turpin ; Georgina Kerr ; Hannah Gullo ; [et al...] . - 2018 . - p. 82-89. Langues : Anglais (eng) in The British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 82-89 Mots-clés : ergothérapie  sclérose en plaques  fatigue  phénoménologie Résumé : Introduction Fatigue substantially affects the lives of many people with multiple sclerosis. This study aimed to further our understanding of the experience of living with multiple sclerosis fatigue by exploring how people became aware of and understood their multiple sclerosis fatigue and how they accommodate it in their daily lives. Method The study used an existential approach to thematic analysis. Thirteen in-depth, semi-structured interviews with people who experienced multiple sclerosis fatigue were conducted and analysed. Results Participants developed an understanding of multiple sclerosis fatigue through gaining awareness of its effect on their lives, seeking information themselves and being informed by health professionals. Participants described how they began to understand the effect of fatigue in their lives and make decisions about how to accommodate it. They discussed the challenges associated with helping others to understand their multiple sclerosis fatigue. Conclusion Lay and expert explanations, the phenomenological notions of lived experience, self-identity and embodiment and stigma associated with invisible disability were useful concepts for understanding the results. Clinicians should consider these concepts when supporting people with multiple sclerosis fatigue to understand the effect of fatigue in their daily lives and use fatigue management strategies to make effective lifestyle changes to accommodate it. Permalink : ./index.php?lvl=notice_display&id=57836

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Understanding Parkinson’s through visual narratives: “I’m not Mrs. Parkinson’s” / Sarah G. Lutz in The British Journal of Occupational Therapy, Vol.81 Issue 2 (February 2018)

Public ISBD [article]  inThe British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 90-100 Titre : Understanding Parkinson’s through visual narratives: “I’m not Mrs. Parkinson’s” Type de document : texte imprimé Auteurs : Sarah G. Lutz ; Jeffrey D. Holmes ; Debbie Laliberte Rudman ; [et al...] Année de publication : 2018 Article en page(s) : p. 90-100 Langues : Anglais (eng) Mots-clés : ergothérapie  maladie de Parkinson  identité  représentation Résumé : Introduction Although it is accepted that individuals with Parkinson’s disease must navigate challenges such as receiving their diagnosis and changing daily occupations, little is known about how they navigate. The purpose of this study is to deepen the current understanding of the experience of living with Parkinson’s disease and its implications for occupation through a narrative visual methodology (photo-elicitation). Method Six individuals with Parkinson’s disease were asked to take photographs and share verbal narrative accounts to illustrate their experience of living with Parkinson’s disease. Findings Results highlight the interrelationship between occupation and identity, as many of the participants’ stories were interpreted as foregrounding the negotiation of occupation, and how such negotiation shaped their sense of identity. Overall, three major themes were identified: (1) Framing the meaning of Parkinson’s disease (accepting the disease as part of who they were); (2) Negotiating engagement in occupation (ongoing deliberation over whether to continue engaging in certain aspects of life as Parkinson’s disease progressed); and (3) Being ready to accept changes that impact personal or social identity (readiness to accept help and to identify as someone with Parkinson’s disease). Conclusion Attending to insights regarding the lived experience of Parkinson’s disease will enhance quality of care through informing an enriched client-centered, occupation-based approach. Permalink : ./index.php?lvl=notice_display&id=57837 [article] Understanding Parkinson’s through visual narratives: “I’m not Mrs. Parkinson’s” [texte imprimé] / Sarah G. Lutz ; Jeffrey D. Holmes ; Debbie Laliberte Rudman ; [et al...] . - 2018 . - p. 90-100. Langues : Anglais (eng) in The British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 90-100 Mots-clés : ergothérapie  maladie de Parkinson  identité  représentation Résumé : Introduction Although it is accepted that individuals with Parkinson’s disease must navigate challenges such as receiving their diagnosis and changing daily occupations, little is known about how they navigate. The purpose of this study is to deepen the current understanding of the experience of living with Parkinson’s disease and its implications for occupation through a narrative visual methodology (photo-elicitation). Method Six individuals with Parkinson’s disease were asked to take photographs and share verbal narrative accounts to illustrate their experience of living with Parkinson’s disease. Findings Results highlight the interrelationship between occupation and identity, as many of the participants’ stories were interpreted as foregrounding the negotiation of occupation, and how such negotiation shaped their sense of identity. Overall, three major themes were identified: (1) Framing the meaning of Parkinson’s disease (accepting the disease as part of who they were); (2) Negotiating engagement in occupation (ongoing deliberation over whether to continue engaging in certain aspects of life as Parkinson’s disease progressed); and (3) Being ready to accept changes that impact personal or social identity (readiness to accept help and to identify as someone with Parkinson’s disease). Conclusion Attending to insights regarding the lived experience of Parkinson’s disease will enhance quality of care through informing an enriched client-centered, occupation-based approach. Permalink : ./index.php?lvl=notice_display&id=57837

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Comparing activity engagement of people aged 18 to 64 years with and without Parkinson’s disease / Chloe Bryant in The British Journal of Occupational Therapy, Vol.81 Issue 2 (February 2018)

Public ISBD [article]  inThe British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 101-105 Titre : Comparing activity engagement of people aged 18 to 64 years with and without Parkinson’s disease Type de document : texte imprimé Auteurs : Chloe Bryant ; Louise Gustafsson ; Jacki Liddle ; Tereza Stillerova Année de publication : 2018 Article en page(s) : p. 101-105 Langues : Anglais (eng) Mots-clés : ergothérapie  adulte  évaluation  activité de la vie quotidienne Résumé : Introduction Measuring activity engagement using the Activity Card Sort Australia (18–64) supports occupational therapists and clients to identify goals for therapeutic interventions. The aim of this study was to investigate activity engagement for people aged 18 to 64 years with and without Parkinson’s disease. Method Thirty-two participants, 16 people with Parkinson’s disease (mean age 57.8) and 16 healthy adults (mean age 53.1), were required to sort 85 visual activity cards into one of five categories: ‘never done’, ‘do not do now’, ‘do now’, ‘do less now’ and ‘given up’. The retained activity values were calculated and compared using the Mann–Whitney U Test. Results The overall retained activity scores were not significantly different (p = .81); however, the group with Parkinson’s disease had higher retained scores in the physical activities domain (p = .04) Conclusion The preventative exercise regimes of people with Parkinson’s disease seems to influence activity engagement patterns. A more detailed understanding of activity engagement may further help form the basis of meaningful interventions. Permalink : ./index.php?lvl=notice_display&id=57838 [article] Comparing activity engagement of people aged 18 to 64 years with and without Parkinson’s disease [texte imprimé] / Chloe Bryant ; Louise Gustafsson ; Jacki Liddle ; Tereza Stillerova . - 2018 . - p. 101-105. Langues : Anglais (eng) in The British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 101-105 Mots-clés : ergothérapie  adulte  évaluation  activité de la vie quotidienne Résumé : Introduction Measuring activity engagement using the Activity Card Sort Australia (18–64) supports occupational therapists and clients to identify goals for therapeutic interventions. The aim of this study was to investigate activity engagement for people aged 18 to 64 years with and without Parkinson’s disease. Method Thirty-two participants, 16 people with Parkinson’s disease (mean age 57.8) and 16 healthy adults (mean age 53.1), were required to sort 85 visual activity cards into one of five categories: ‘never done’, ‘do not do now’, ‘do now’, ‘do less now’ and ‘given up’. The retained activity values were calculated and compared using the Mann–Whitney U Test. Results The overall retained activity scores were not significantly different (p = .81); however, the group with Parkinson’s disease had higher retained scores in the physical activities domain (p = .04) Conclusion The preventative exercise regimes of people with Parkinson’s disease seems to influence activity engagement patterns. A more detailed understanding of activity engagement may further help form the basis of meaningful interventions. Permalink : ./index.php?lvl=notice_display&id=57838

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The experiences of stroke survivors with managing eating 6 months post stroke / Natalie Jones in The British Journal of Occupational Therapy, Vol.81 Issue 2 (February 2018)

Public ISBD [article]  inThe British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 106-115 Titre : The experiences of stroke survivors with managing eating 6 months post stroke Type de document : texte imprimé Auteurs : Natalie Jones ; Nasrin Nasr Année de publication : 2018 Article en page(s) : p. 106-115 Langues : Anglais (eng) Mots-clés : ergothérapie  accident vasculaire cérébral  alimentation Résumé : Introduction: Stroke affects activities of daily living such as eating. Little is known about how stroke survivors cope with eating difficulties in the long term. This research conducted in the United Kingdom explores the complex phenomenon of eating difficulties 6 months post stroke. Method: This qualitative study used a participatory approach to explore the experiences of seven stroke survivors using a focus group and visual methods of photography, to explore the lived experiences of managing eating with a stroke disability. Findings: Participants (n = 8) identified barriers to managing eating including physical, social, environmental and emotional issues. Participants recognised that sustaining eating activities regardless of their disabilities was important for their wellbeing. Stroke survivors sought opportunities to participate in occupations that revolved around eating, which enabled them to experience mastery over eating activities. Participants viewed eating activities as a way to self-monitor recovery and progression. Conclusion: This study informs occupational therapy practice about how people living with stroke strive to adapt to eating difficulties. Permalink : ./index.php?lvl=notice_display&id=57839 [article] The experiences of stroke survivors with managing eating 6 months post stroke [texte imprimé] / Natalie Jones ; Nasrin Nasr . - 2018 . - p. 106-115. Langues : Anglais (eng) in The British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 106-115 Mots-clés : ergothérapie  accident vasculaire cérébral  alimentation Résumé : Introduction: Stroke affects activities of daily living such as eating. Little is known about how stroke survivors cope with eating difficulties in the long term. This research conducted in the United Kingdom explores the complex phenomenon of eating difficulties 6 months post stroke. Method: This qualitative study used a participatory approach to explore the experiences of seven stroke survivors using a focus group and visual methods of photography, to explore the lived experiences of managing eating with a stroke disability. Findings: Participants (n = 8) identified barriers to managing eating including physical, social, environmental and emotional issues. Participants recognised that sustaining eating activities regardless of their disabilities was important for their wellbeing. Stroke survivors sought opportunities to participate in occupations that revolved around eating, which enabled them to experience mastery over eating activities. Participants viewed eating activities as a way to self-monitor recovery and progression. Conclusion: This study informs occupational therapy practice about how people living with stroke strive to adapt to eating difficulties. Permalink : ./index.php?lvl=notice_display&id=57839

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Feasibility of a novel intervention to improve participation after stroke / Susan Stark in The British Journal of Occupational Therapy, Vol.81 Issue 2 (February 2018)

Public ISBD [article]  inThe British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 116-124 Titre : Feasibility of a novel intervention to improve participation after stroke Type de document : texte imprimé Auteurs : Susan Stark ; Marian Keglovits ; Emily Somerville ; [et al...] Année de publication : 2018 Article en page(s) : p. 116-124 Langues : Anglais (eng) Mots-clés : ergothérapie  accident vasculaire cérébral  domicile  adaptation  participation sociale Résumé : Introduction Stroke is a leading cause of serious, long-term disability in the United States. With shorter inpatient hospital stays, more time in rehabilitation is devoted to medical stabilization and less on skills to regain independence in daily activities. The transition home may be an opportunity for intervention focused on regaining independence. We propose an enhanced rehabilitation transition program called Community Participation Transition after Stroke. Method A prospective, randomized, single-blinded, parallel-group pilot study was completed with 15 participants to demonstrate feasibility. Findings Fidelity to the protocol was achieved: The Community Participation Transition after Stroke group received 81% of the planned minutes and 83% of the intervention visits. There was no difference between groups for healthcare utilization or falls. Adherence was 85% at three months and 71% at nine months for the home modification intervention. At 6 months, scores improved by 17.39 points for the Community Participation Transition after Stroke group, and 1.30 points for the control group. Environmental barriers decreased in both groups. Conclusion This pilot study demonstrated that it is feasible to implement a community participation intervention during the period of transitioning home from inpatient rehabilitation for stroke survivors. Additional studies are necessary to determine the efficacy of the intervention. Permalink : ./index.php?lvl=notice_display&id=57840 [article] Feasibility of a novel intervention to improve participation after stroke [texte imprimé] / Susan Stark ; Marian Keglovits ; Emily Somerville ; [et al...] . - 2018 . - p. 116-124. Langues : Anglais (eng) in The British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 116-124 Mots-clés : ergothérapie  accident vasculaire cérébral  domicile  adaptation  participation sociale Résumé : Introduction Stroke is a leading cause of serious, long-term disability in the United States. With shorter inpatient hospital stays, more time in rehabilitation is devoted to medical stabilization and less on skills to regain independence in daily activities. The transition home may be an opportunity for intervention focused on regaining independence. We propose an enhanced rehabilitation transition program called Community Participation Transition after Stroke. Method A prospective, randomized, single-blinded, parallel-group pilot study was completed with 15 participants to demonstrate feasibility. Findings Fidelity to the protocol was achieved: The Community Participation Transition after Stroke group received 81% of the planned minutes and 83% of the intervention visits. There was no difference between groups for healthcare utilization or falls. Adherence was 85% at three months and 71% at nine months for the home modification intervention. At 6 months, scores improved by 17.39 points for the Community Participation Transition after Stroke group, and 1.30 points for the control group. Environmental barriers decreased in both groups. Conclusion This pilot study demonstrated that it is feasible to implement a community participation intervention during the period of transitioning home from inpatient rehabilitation for stroke survivors. Additional studies are necessary to determine the efficacy of the intervention. Permalink : ./index.php?lvl=notice_display&id=57840

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