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Patients’ and caregivers’ perceptions of occupational therapy and adapting to discharge home from an inpatient palliative care setting / Celia Marston in The British Journal of Occupational Therapy, Volume 78 numéro 11 (Novembre 2015)
[article]
Titre : Patients’ and caregivers’ perceptions of occupational therapy and adapting to discharge home from an inpatient palliative care setting Type de document : texte imprimé Auteurs : Celia Marston, Auteur ; Meera Agar, Auteur ; Ted Brown, Auteur Année de publication : 2015 Article en page(s) : p.688-696 Langues : Anglais (eng) Mots-clés : Occupational therapy discharge planning palliative care Résumé : Introduction: There is limited research into the role of occupational therapy in discharge planning in palliative care. This study aimed to explore patients’ and caregivers’ perceptions of occupational therapy in the context of discharge home from an inpatient palliative care setting.
Method: Semi-structured interviews were conducted with patients and caregivers following discharge home from inpatient palliative care. Participants were selected using purposive sampling and data was thematically analysed.
Results: Five caregivers and three patients were interviewed. Three main themes emerged: (1) shared roles in discharge planning; (2) perceived benefits of occupational therapy; and (3) adapting to discharge home. Patients and caregivers viewed occupational therapy as the practical help needed to achieve discharge. They had difficulty differentiating between professional roles and perceived the discharge process as a shared responsibility between themselves and the clinicians. Adapting to discharge home involved coping with the uncertain and unexpected, where limited understanding of professional roles meant participants did not know who to seek assistance from.
Conclusion: Occupational therapy was viewed as the practical help needed for discharge home from a palliative care setting. Clinicians need to take primary responsibility for understanding each other’s roles and providing information on who can assist after discharge.En ligne : http://bjo.sagepub.com/content/78/11/688.abstract Permalink : ./index.php?lvl=notice_display&id=40959
in The British Journal of Occupational Therapy > Volume 78 numéro 11 (Novembre 2015) . - p.688-696[article] Patients’ and caregivers’ perceptions of occupational therapy and adapting to discharge home from an inpatient palliative care setting [texte imprimé] / Celia Marston, Auteur ; Meera Agar, Auteur ; Ted Brown, Auteur . - 2015 . - p.688-696.
Langues : Anglais (eng)
in The British Journal of Occupational Therapy > Volume 78 numéro 11 (Novembre 2015) . - p.688-696
Mots-clés : Occupational therapy discharge planning palliative care Résumé : Introduction: There is limited research into the role of occupational therapy in discharge planning in palliative care. This study aimed to explore patients’ and caregivers’ perceptions of occupational therapy in the context of discharge home from an inpatient palliative care setting.
Method: Semi-structured interviews were conducted with patients and caregivers following discharge home from inpatient palliative care. Participants were selected using purposive sampling and data was thematically analysed.
Results: Five caregivers and three patients were interviewed. Three main themes emerged: (1) shared roles in discharge planning; (2) perceived benefits of occupational therapy; and (3) adapting to discharge home. Patients and caregivers viewed occupational therapy as the practical help needed to achieve discharge. They had difficulty differentiating between professional roles and perceived the discharge process as a shared responsibility between themselves and the clinicians. Adapting to discharge home involved coping with the uncertain and unexpected, where limited understanding of professional roles meant participants did not know who to seek assistance from.
Conclusion: Occupational therapy was viewed as the practical help needed for discharge home from a palliative care setting. Clinicians need to take primary responsibility for understanding each other’s roles and providing information on who can assist after discharge.En ligne : http://bjo.sagepub.com/content/78/11/688.abstract Permalink : ./index.php?lvl=notice_display&id=40959 Exemplaires (1)
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Exclu du prêtExploring the impact of brain cancer on people and their participation / Kathrine Hammill in The British Journal of Occupational Therapy, Vol. 82 Issue 3 (Mars 2019)
[article]
Titre : Exploring the impact of brain cancer on people and their participation Type de document : texte imprimé Auteurs : Kathrine Hammill ; Catherine G. Stewart ; Natasha Kosic ; Lauren Bellamy ; Hannah Irvine ; Dawn Hutley ; Karen Arblaster Année de publication : 2019 Article en page(s) : p. 162-169 Note générale : doi.org/10.1177/0308022618800186 Langues : Anglais (eng) Mots-clés : Oncology palliative care glioblastoma occupational therapy Résumé : Introduction
Brain cancer diagnoses are rising, and the prognosis is commonly life-limiting. Brain cancer symptoms and the side effects of treatment are imposing and harmful. Little is known about the effect of these symptoms and treatments on occupational participation or about the role that occupational therapy can play for people with brain cancer.
Methods
Sixteen participants with brain cancer were purposively recruited from a single site. Data was collected using semi-structured interviews. Interviews were analysed thematically.
Results
Three overarching themes were identified: (a) ‘there’s a lot of things that I can’t do anymore’: adverse effects of tumour and treatments; (b) ‘you adjust with adversity’: accepting altered occupational participation levels; (c) occupational therapy: ‘why is she here?’
Conclusions
Findings highlight a connection between brain cancer symptoms, treatment side effects and occupational participation. A disconnect was found between occupational therapy services and occupational needs. Further research could explore whether realigning occupational therapy services to address the concerns identified in this study leads to enhanced occupational participation through the journey of brain cancer.Permalink : ./index.php?lvl=notice_display&id=84435
in The British Journal of Occupational Therapy > Vol. 82 Issue 3 (Mars 2019) . - p. 162-169[article] Exploring the impact of brain cancer on people and their participation [texte imprimé] / Kathrine Hammill ; Catherine G. Stewart ; Natasha Kosic ; Lauren Bellamy ; Hannah Irvine ; Dawn Hutley ; Karen Arblaster . - 2019 . - p. 162-169.
doi.org/10.1177/0308022618800186
Langues : Anglais (eng)
in The British Journal of Occupational Therapy > Vol. 82 Issue 3 (Mars 2019) . - p. 162-169
Mots-clés : Oncology palliative care glioblastoma occupational therapy Résumé : Introduction
Brain cancer diagnoses are rising, and the prognosis is commonly life-limiting. Brain cancer symptoms and the side effects of treatment are imposing and harmful. Little is known about the effect of these symptoms and treatments on occupational participation or about the role that occupational therapy can play for people with brain cancer.
Methods
Sixteen participants with brain cancer were purposively recruited from a single site. Data was collected using semi-structured interviews. Interviews were analysed thematically.
Results
Three overarching themes were identified: (a) ‘there’s a lot of things that I can’t do anymore’: adverse effects of tumour and treatments; (b) ‘you adjust with adversity’: accepting altered occupational participation levels; (c) occupational therapy: ‘why is she here?’
Conclusions
Findings highlight a connection between brain cancer symptoms, treatment side effects and occupational participation. A disconnect was found between occupational therapy services and occupational needs. Further research could explore whether realigning occupational therapy services to address the concerns identified in this study leads to enhanced occupational participation through the journey of brain cancer.Permalink : ./index.php?lvl=notice_display&id=84435 Exemplaires (1)
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Exclu du prêtThe lived experience of refractory breathlessness for people living in the community / Kezia Tieck in The British Journal of Occupational Therapy, Vol. 82 Issue 2 (Février 2019)
[article]
Titre : The lived experience of refractory breathlessness for people living in the community Type de document : texte imprimé Auteurs : Kezia Tieck ; Lynette Mackenzie ; Melanie Lovell Année de publication : 2019 Article en page(s) : p. 127-135 Note générale : doi.org/10.1177/0308022618804754 Langues : Anglais (eng) Mots-clés : Dyspnoea occupational therapy chronic obstructive pulmonary disease activities of daily living palliative care Résumé : Introduction
Refractory breathlessness occurs at rest or on minimal exertion and persists chronically despite optimal treatment of the underlying cause. The burden and prevalence of breathlessness is high, yet symptoms remain under-treated and those affected struggle daily with the condition. This study aims to gain a greater understanding of the lived experience of refractory breathlessness and its effect on daily activities.
Method
Participants were recruited from a Sydney-based outpatient breathlessness clinic. An exploratory qualitative approach was undertaken with individual, semi-structured interviews, using NVivo software to conduct thematic analysis. The study recruited consecutive patients until thematic saturation was reached.
Results
Six participants were interviewed and four main themes identified. 1. Living on the edge, referring to the extreme feeling of breathlessness experienced by patients; 2. Social meanings of breathlessness, describing the significance of social support; 3. Reduced to the basics, referring to the effect breathlessness has on basic daily tasks; and 4. Sources of security, which describes the measures participants take to protect themselves from their own breathlessness.
Conclusion
Participants noted the importance of functional participation for improved engagement and quality of life. There is scope to develop specific interventions and occupational therapy services incorporating self-management and equipment prescription for people with dyspnoea.Permalink : ./index.php?lvl=notice_display&id=80403
in The British Journal of Occupational Therapy > Vol. 82 Issue 2 (Février 2019) . - p. 127-135[article] The lived experience of refractory breathlessness for people living in the community [texte imprimé] / Kezia Tieck ; Lynette Mackenzie ; Melanie Lovell . - 2019 . - p. 127-135.
doi.org/10.1177/0308022618804754
Langues : Anglais (eng)
in The British Journal of Occupational Therapy > Vol. 82 Issue 2 (Février 2019) . - p. 127-135
Mots-clés : Dyspnoea occupational therapy chronic obstructive pulmonary disease activities of daily living palliative care Résumé : Introduction
Refractory breathlessness occurs at rest or on minimal exertion and persists chronically despite optimal treatment of the underlying cause. The burden and prevalence of breathlessness is high, yet symptoms remain under-treated and those affected struggle daily with the condition. This study aims to gain a greater understanding of the lived experience of refractory breathlessness and its effect on daily activities.
Method
Participants were recruited from a Sydney-based outpatient breathlessness clinic. An exploratory qualitative approach was undertaken with individual, semi-structured interviews, using NVivo software to conduct thematic analysis. The study recruited consecutive patients until thematic saturation was reached.
Results
Six participants were interviewed and four main themes identified. 1. Living on the edge, referring to the extreme feeling of breathlessness experienced by patients; 2. Social meanings of breathlessness, describing the significance of social support; 3. Reduced to the basics, referring to the effect breathlessness has on basic daily tasks; and 4. Sources of security, which describes the measures participants take to protect themselves from their own breathlessness.
Conclusion
Participants noted the importance of functional participation for improved engagement and quality of life. There is scope to develop specific interventions and occupational therapy services incorporating self-management and equipment prescription for people with dyspnoea.Permalink : ./index.php?lvl=notice_display&id=80403 Exemplaires (2)
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