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Creating a rehabilitation living lab to optimize participation and inclusion for persons with physical disabilities / Eva KEHAYIA in Alter, Vol. 8, n°3 (Juillet / Septembre 2014)
[article]
Titre : Creating a rehabilitation living lab to optimize participation and inclusion for persons with physical disabilities Titre original : Création d’un laboratoire vivant en réadaptation pour optimiser la participation et l’inclusion des personnes avec déficiences physiques Type de document : texte imprimé Auteurs : Eva KEHAYIA, Auteur Année de publication : 2014 Article en page(s) : p.151 - p.157 Langues : Français (fre) Mots-clés : Rehabilitation Participation Inclusion Physical disabilities Living lab Participatory action research Réadaptation Participation sociale Incapacités physiques Laboratoire vivant Recherche action participative Résumé : We present an on-going multidisciplinary and multisectorial strategic development project put forth by the Centre for Interdisciplinary Research in Rehabilitation of greater Montréal (CRIR) in Quebec, Canada and its members, in collaboration with a Montréal “renovation-ready” shopping mall, local community organizations, and local, national and international research and industrial partners. Beginning in 2011, within the context of the Mall as Living Lab (MALL), more than 45 projects were initiated to: (1) identify the environmental, physical and social obstacles and facilitators to participation; (2) develop technology and interventions to optimize physical and cognitive function participation and inclusion; (3) implement and evaluate the impact of technology and interventions in vivo. Two years later and working within a participatory action research (PAR) approach, and the overarching WHO framework of the International Classification of Functioning, Disability and Health (ICF), we discuss challenges and future endeavors. Challenges include creating and maintaining partnerships, ensuring a PAR approach to engage multiple stakeholders (e.g. people with disabilities, rehabilitation and design researchers, health professionals, community members and shopping mall stakeholders) and assessing the overall impact of the living lab. Future endeavors, including the linking between research results and recommendations for renovations to the mall, are also presented.
Nous présentons un projet stratégique multidisciplinaire et multisectoriel mené par le Centre de recherche interdisciplinaire en réadaptation (CRIR), en collaboration avec un centre commercial montréalais, des organismes communautaires et des partenaires de recherche et industriels locaux, nationaux et internationaux. Depuis 2011 ayant le Centre commercial comme laboratoire vivant, plus de 45 projets ont été amorcés pour : (1) identifier les obstacles et facilitateurs environnementaux, physiques et sociaux à la participation ; (2) développer des technologies et interventions pour optimiser la fonction physique et cognitive ; (3) implanter et évaluer l’impact des technologies et interventions in vivo. Deux ans plus tard, avec une approche recherche action participative (RAP) dans le cadre de la Classification International du Fonctionnement, du handicap et de la santé (CIF) de l’OMS, nous discutons des défis et entreprises futures. Les défis incluent la création et le maintien de partenariats, assurant une approche RAP pour engager plusieurs parties prenantes (ex. personnes avec incapacités, chercheurs, professionnels de la santé, membres de la communauté et parties prenantes du centre commercial) et évaluant l’impact global du projet. Les entreprises futures, qui incluent mettre en lien les résultats de recherche avec les recommandations pour les rénovations du centre commercial, sont aussi présentées.Permalink : ./index.php?lvl=notice_display&id=33819
in Alter > Vol. 8, n°3 (Juillet / Septembre 2014) . - p.151 - p.157[article] Creating a rehabilitation living lab to optimize participation and inclusion for persons with physical disabilities = Création d’un laboratoire vivant en réadaptation pour optimiser la participation et l’inclusion des personnes avec déficiences physiques [texte imprimé] / Eva KEHAYIA, Auteur . - 2014 . - p.151 - p.157.
Langues : Français (fre)
in Alter > Vol. 8, n°3 (Juillet / Septembre 2014) . - p.151 - p.157
Mots-clés : Rehabilitation Participation Inclusion Physical disabilities Living lab Participatory action research Réadaptation Participation sociale Incapacités physiques Laboratoire vivant Recherche action participative Résumé : We present an on-going multidisciplinary and multisectorial strategic development project put forth by the Centre for Interdisciplinary Research in Rehabilitation of greater Montréal (CRIR) in Quebec, Canada and its members, in collaboration with a Montréal “renovation-ready” shopping mall, local community organizations, and local, national and international research and industrial partners. Beginning in 2011, within the context of the Mall as Living Lab (MALL), more than 45 projects were initiated to: (1) identify the environmental, physical and social obstacles and facilitators to participation; (2) develop technology and interventions to optimize physical and cognitive function participation and inclusion; (3) implement and evaluate the impact of technology and interventions in vivo. Two years later and working within a participatory action research (PAR) approach, and the overarching WHO framework of the International Classification of Functioning, Disability and Health (ICF), we discuss challenges and future endeavors. Challenges include creating and maintaining partnerships, ensuring a PAR approach to engage multiple stakeholders (e.g. people with disabilities, rehabilitation and design researchers, health professionals, community members and shopping mall stakeholders) and assessing the overall impact of the living lab. Future endeavors, including the linking between research results and recommendations for renovations to the mall, are also presented.
Nous présentons un projet stratégique multidisciplinaire et multisectoriel mené par le Centre de recherche interdisciplinaire en réadaptation (CRIR), en collaboration avec un centre commercial montréalais, des organismes communautaires et des partenaires de recherche et industriels locaux, nationaux et internationaux. Depuis 2011 ayant le Centre commercial comme laboratoire vivant, plus de 45 projets ont été amorcés pour : (1) identifier les obstacles et facilitateurs environnementaux, physiques et sociaux à la participation ; (2) développer des technologies et interventions pour optimiser la fonction physique et cognitive ; (3) implanter et évaluer l’impact des technologies et interventions in vivo. Deux ans plus tard, avec une approche recherche action participative (RAP) dans le cadre de la Classification International du Fonctionnement, du handicap et de la santé (CIF) de l’OMS, nous discutons des défis et entreprises futures. Les défis incluent la création et le maintien de partenariats, assurant une approche RAP pour engager plusieurs parties prenantes (ex. personnes avec incapacités, chercheurs, professionnels de la santé, membres de la communauté et parties prenantes du centre commercial) et évaluant l’impact global du projet. Les entreprises futures, qui incluent mettre en lien les résultats de recherche avec les recommandations pour les rénovations du centre commercial, sont aussi présentées.Permalink : ./index.php?lvl=notice_display&id=33819 Exemplaires (1)
Cote Support Localisation Section Disponibilité Revue Revue Centre de Documentation HELHa Campus Montignies Armoires à volets Document exclu du prêt - à consulter sur place
Exclu du prêtSocial participation and psychosocial outcomes of young adults with chronic physical conditions: Comparing recipients and non-recipients of disability benefits / Marjolijn I. Bal in Annals of physical and rehabilitation medicine, Vol. 61, n°2 (Mars 2018)
[article]
Titre : Social participation and psychosocial outcomes of young adults with chronic physical conditions: Comparing recipients and non-recipients of disability benefits Type de document : texte imprimé Auteurs : Marjolijn I. Bal ; Jane N.T. Sattoe ; Harald S. Miedema ; AnneLoes van Staa Année de publication : 2018 Article en page(s) : p. 85-91 Note générale : Doi : 10.1016/j.rehab.2017.12.005 Langues : Anglais (eng) Mots-clés : Chronic conditions Physical disabilities Adolescent Psychosocial development Social Participation Quality of life Résumé : Background
Little is known about any differences between young people with chronic physical conditions who do and do not apply for disability benefits in young adulthood for providing insights for future policy and rehabilitation care.
Objective
We aimed to identify predictors during adolescence of receiving disability benefits in young adulthood and to compare recipients and non-recipients of benefits in social participation and psychosocial outcomes in young adulthood.
Methods
Follow-up study of 18 to 25 year olds with various chronic conditions who at adolescent age completed a web-based survey (n=518; T0). The outcome was receiving disability benefits (yes or no). Associations with background characteristics, social participation, and impact of the chronic condition were explored with stepwise multivariate modelling, using T0 variables. Differences between recipients and non-recipients were explored using chi-square tests and t-tests.
Results
Receiving disability benefits in young adulthood was associated with greater extent of physical disability, receiving less special education, absenteeism at school/work, and low health-related quality of life during adolescence. In young adulthood, recipients of benefits reported higher perceived impact of the chronic condition on their school/work career and lower quality of life than non-recipients. Social participation varied across domains.
Conclusion
This study provides important insights into the characteristics of a vulnerable subgroup of young people with chronic physical conditions. Disability benefit recipients experienced more impact of their chronic condition and reported a lower health-related quality of life over time than non-recipients. Rehabilitation professionals are encouraged to use patient-reported outcomes to address the lived experiences and screen the need for psychosocial support of this vulnerable subgroup of young people with chronic physical conditions.Permalink : ./index.php?lvl=notice_display&id=80451
in Annals of physical and rehabilitation medicine > Vol. 61, n°2 (Mars 2018) . - p. 85-91[article] Social participation and psychosocial outcomes of young adults with chronic physical conditions: Comparing recipients and non-recipients of disability benefits [texte imprimé] / Marjolijn I. Bal ; Jane N.T. Sattoe ; Harald S. Miedema ; AnneLoes van Staa . - 2018 . - p. 85-91.
Doi : 10.1016/j.rehab.2017.12.005
Langues : Anglais (eng)
in Annals of physical and rehabilitation medicine > Vol. 61, n°2 (Mars 2018) . - p. 85-91
Mots-clés : Chronic conditions Physical disabilities Adolescent Psychosocial development Social Participation Quality of life Résumé : Background
Little is known about any differences between young people with chronic physical conditions who do and do not apply for disability benefits in young adulthood for providing insights for future policy and rehabilitation care.
Objective
We aimed to identify predictors during adolescence of receiving disability benefits in young adulthood and to compare recipients and non-recipients of benefits in social participation and psychosocial outcomes in young adulthood.
Methods
Follow-up study of 18 to 25 year olds with various chronic conditions who at adolescent age completed a web-based survey (n=518; T0). The outcome was receiving disability benefits (yes or no). Associations with background characteristics, social participation, and impact of the chronic condition were explored with stepwise multivariate modelling, using T0 variables. Differences between recipients and non-recipients were explored using chi-square tests and t-tests.
Results
Receiving disability benefits in young adulthood was associated with greater extent of physical disability, receiving less special education, absenteeism at school/work, and low health-related quality of life during adolescence. In young adulthood, recipients of benefits reported higher perceived impact of the chronic condition on their school/work career and lower quality of life than non-recipients. Social participation varied across domains.
Conclusion
This study provides important insights into the characteristics of a vulnerable subgroup of young people with chronic physical conditions. Disability benefit recipients experienced more impact of their chronic condition and reported a lower health-related quality of life over time than non-recipients. Rehabilitation professionals are encouraged to use patient-reported outcomes to address the lived experiences and screen the need for psychosocial support of this vulnerable subgroup of young people with chronic physical conditions.Permalink : ./index.php?lvl=notice_display&id=80451 Exemplaires (1)
Cote Support Localisation Section Disponibilité Revue Revue Centre de Documentation HELHa Campus Montignies Armoires à volets Document exclu du prêt - à consulter sur place
Exclu du prêt