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Self-care of children with arthrogryposis in Gauteng, South Africa / Frances Joubert in The British Journal of Occupational Therapy, Vol.79 N°1 (January 2016)
[article]
Titre : Self-care of children with arthrogryposis in Gauteng, South Africa Type de document : texte imprimé Auteurs : Frances Joubert ; Denise Franzsen Année de publication : 2016 Article en page(s) : p.35-41 Langues : Anglais (eng) Mots-clés : arthrogryposis self-care independance caregiver assistance Résumé :
Introduction This study investigated the functional ability of children with arthrogryposis, aged 6 months to 7.5 years, in South Africa, with the focus on the execution of age-appropriate self-care tasks. The level of independence, amount of caregiver assistance and modifications used during each task were ascertained, to assist in guiding occupational therapy intervention.
Method This study was based on a quantitative cross-sectional design, with 19 participants divided into age groups assessed using the Pediatric Evaluation of Disability Inventory (PEDI).
Results The infant and toddler group performed above expected levels in the self-care domain, whereas the preschool and school-aged group performed below the expected level. A significant correlation between the amount of caregiver assistance needed and the participants’ level of independence was found especially in the preschool and school-aged group. There was little use of modifications even with occupational therapy intervention and participants relied on compensatory methods and assistance to execute self-care tasks.
Conclusion This study indicated that children with arthrogryposis need intervention to promote the independent execution of self-care tasks, and reduce the need for caregiver assistance. Therapists are encouraged to make use of modifications in furthering the age-appropriate independence of this population.
Permalink : ./index.php?lvl=notice_display&id=42370
in The British Journal of Occupational Therapy > Vol.79 N°1 (January 2016) . - p.35-41[article] Self-care of children with arthrogryposis in Gauteng, South Africa [texte imprimé] / Frances Joubert ; Denise Franzsen . - 2016 . - p.35-41.
Langues : Anglais (eng)
in The British Journal of Occupational Therapy > Vol.79 N°1 (January 2016) . - p.35-41
Mots-clés : arthrogryposis self-care independance caregiver assistance Résumé :
Introduction This study investigated the functional ability of children with arthrogryposis, aged 6 months to 7.5 years, in South Africa, with the focus on the execution of age-appropriate self-care tasks. The level of independence, amount of caregiver assistance and modifications used during each task were ascertained, to assist in guiding occupational therapy intervention.
Method This study was based on a quantitative cross-sectional design, with 19 participants divided into age groups assessed using the Pediatric Evaluation of Disability Inventory (PEDI).
Results The infant and toddler group performed above expected levels in the self-care domain, whereas the preschool and school-aged group performed below the expected level. A significant correlation between the amount of caregiver assistance needed and the participants’ level of independence was found especially in the preschool and school-aged group. There was little use of modifications even with occupational therapy intervention and participants relied on compensatory methods and assistance to execute self-care tasks.
Conclusion This study indicated that children with arthrogryposis need intervention to promote the independent execution of self-care tasks, and reduce the need for caregiver assistance. Therapists are encouraged to make use of modifications in furthering the age-appropriate independence of this population.
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Exclu du prêtValidation of the Oswestry Disability Index for pain and disability in arthrogryposis multiplex congenita / Talon Jones in Annals of physical and rehabilitation medicine, Vol. 62, n°2 (Mars 2019)
[article]
Titre : Validation of the Oswestry Disability Index for pain and disability in arthrogryposis multiplex congenita Type de document : texte imprimé Auteurs : Talon Jones ; Rebecca Miller ; John T. Street ; Bonita Sawatzky Année de publication : 2019 Article en page(s) : p. 92-97 Note générale : Doi : 10.1016/j.rehab.2018.05.1319 Langues : Anglais (eng) Mots-clés : Arthrogryposis Pain Outcome measure Disability Résumé : Objective
Chronic musculoskeletal pain and disability is common in adults with arthrogryposis multiplex congenita (AMC), but validated outcome measures of its related disability are lacking. This study aimed to determine the content and construct validity of the Oswestry Disability Index (ODI) for an AMC-appropriate low-back and lower-extremity pain-related disability questionnaire.
Methods
A mixed methods approach was used to investigate the nature of AMC-related low-back and lower-extremity pain and disability. We included 50 adults with AMC from an international arthrogryposis study. Participants completed 5 pain and disability questionnaires and an interview. Content and construct validity of the ODI in the AMC population was assessed by the proportion of participants who stated ODI domains during the open-ended interview and by R2 values and Pearson's correlation coefficients (r-values), respectively.
Results
The content and construct validity of the ODI were considered moderate to high for measuring low-back pain and lower-extremity disability in the adult AMC population. Participants independently identified many activities of daily living (67%), such as walking, standing, personal care, sitting, lifting and sleeping, already included in the ODI. R2 values were>0.25 for all 3 measures, demonstrating the strength of construct validity of the ODI in individuals with AMC.
Conclusion
The ODI is a valid outcome tool for low-back and lower-extremity pain-related disability for patients with AMC. Upper-extremity issues were not addressed by the ODI, which will be further addressed in future research.En ligne : https://www.sciencedirect.com/science/article/pii/S1877065718313976 Permalink : ./index.php?lvl=notice_display&id=82646
in Annals of physical and rehabilitation medicine > Vol. 62, n°2 (Mars 2019) . - p. 92-97[article] Validation of the Oswestry Disability Index for pain and disability in arthrogryposis multiplex congenita [texte imprimé] / Talon Jones ; Rebecca Miller ; John T. Street ; Bonita Sawatzky . - 2019 . - p. 92-97.
Doi : 10.1016/j.rehab.2018.05.1319
Langues : Anglais (eng)
in Annals of physical and rehabilitation medicine > Vol. 62, n°2 (Mars 2019) . - p. 92-97
Mots-clés : Arthrogryposis Pain Outcome measure Disability Résumé : Objective
Chronic musculoskeletal pain and disability is common in adults with arthrogryposis multiplex congenita (AMC), but validated outcome measures of its related disability are lacking. This study aimed to determine the content and construct validity of the Oswestry Disability Index (ODI) for an AMC-appropriate low-back and lower-extremity pain-related disability questionnaire.
Methods
A mixed methods approach was used to investigate the nature of AMC-related low-back and lower-extremity pain and disability. We included 50 adults with AMC from an international arthrogryposis study. Participants completed 5 pain and disability questionnaires and an interview. Content and construct validity of the ODI in the AMC population was assessed by the proportion of participants who stated ODI domains during the open-ended interview and by R2 values and Pearson's correlation coefficients (r-values), respectively.
Results
The content and construct validity of the ODI were considered moderate to high for measuring low-back pain and lower-extremity disability in the adult AMC population. Participants independently identified many activities of daily living (67%), such as walking, standing, personal care, sitting, lifting and sleeping, already included in the ODI. R2 values were>0.25 for all 3 measures, demonstrating the strength of construct validity of the ODI in individuals with AMC.
Conclusion
The ODI is a valid outcome tool for low-back and lower-extremity pain-related disability for patients with AMC. Upper-extremity issues were not addressed by the ODI, which will be further addressed in future research.En ligne : https://www.sciencedirect.com/science/article/pii/S1877065718313976 Permalink : ./index.php?lvl=notice_display&id=82646 Exemplaires (1)
Cote Support Localisation Section Disponibilité Revue Revue Centre de Documentation HELHa Campus Montignies Armoires à volets Document exclu du prêt - à consulter sur place
Exclu du prêt