Understanding and living with multiple sclerosis fatigue / Merrill Turpin in The British Journal of Occupational Therapy, Vol.81 Issue 2 (February 2018)

Public ISBD [article]  inThe British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 82-89 Titre : Understanding and living with multiple sclerosis fatigue Type de document : texte imprimé Auteurs : Merrill Turpin ; Georgina Kerr ; Hannah Gullo ; [et al...] Année de publication : 2018 Article en page(s) : p. 82-89 Langues : Anglais (eng) Mots-clés : ergothérapie  sclérose en plaques  fatigue  phénoménologie Résumé : Introduction Fatigue substantially affects the lives of many people with multiple sclerosis. This study aimed to further our understanding of the experience of living with multiple sclerosis fatigue by exploring how people became aware of and understood their multiple sclerosis fatigue and how they accommodate it in their daily lives. Method The study used an existential approach to thematic analysis. Thirteen in-depth, semi-structured interviews with people who experienced multiple sclerosis fatigue were conducted and analysed. Results Participants developed an understanding of multiple sclerosis fatigue through gaining awareness of its effect on their lives, seeking information themselves and being informed by health professionals. Participants described how they began to understand the effect of fatigue in their lives and make decisions about how to accommodate it. They discussed the challenges associated with helping others to understand their multiple sclerosis fatigue. Conclusion Lay and expert explanations, the phenomenological notions of lived experience, self-identity and embodiment and stigma associated with invisible disability were useful concepts for understanding the results. Clinicians should consider these concepts when supporting people with multiple sclerosis fatigue to understand the effect of fatigue in their daily lives and use fatigue management strategies to make effective lifestyle changes to accommodate it. Permalink : ./index.php?lvl=notice_display&id=57836 [article] Understanding and living with multiple sclerosis fatigue [texte imprimé] / Merrill Turpin ; Georgina Kerr ; Hannah Gullo ; [et al...] . - 2018 . - p. 82-89. Langues : Anglais (eng) in The British Journal of Occupational Therapy > Vol.81 Issue 2 (February 2018) . - p. 82-89 Mots-clés : ergothérapie  sclérose en plaques  fatigue  phénoménologie Résumé : Introduction Fatigue substantially affects the lives of many people with multiple sclerosis. This study aimed to further our understanding of the experience of living with multiple sclerosis fatigue by exploring how people became aware of and understood their multiple sclerosis fatigue and how they accommodate it in their daily lives. Method The study used an existential approach to thematic analysis. Thirteen in-depth, semi-structured interviews with people who experienced multiple sclerosis fatigue were conducted and analysed. Results Participants developed an understanding of multiple sclerosis fatigue through gaining awareness of its effect on their lives, seeking information themselves and being informed by health professionals. Participants described how they began to understand the effect of fatigue in their lives and make decisions about how to accommodate it. They discussed the challenges associated with helping others to understand their multiple sclerosis fatigue. Conclusion Lay and expert explanations, the phenomenological notions of lived experience, self-identity and embodiment and stigma associated with invisible disability were useful concepts for understanding the results. Clinicians should consider these concepts when supporting people with multiple sclerosis fatigue to understand the effect of fatigue in their daily lives and use fatigue management strategies to make effective lifestyle changes to accommodate it. Permalink : ./index.php?lvl=notice_display&id=57836

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