[article] 
inThe British Journal of Occupational Therapy > Volume 77 numéro 4 (Avril 2014) . - p.174 - p.180

Titre :	Distance caregivers of people with Alzheimer's disease and related dementia: a phenomenological study
Type de document :	texte imprimé
Auteurs :	Megan EDWARDS, Auteur
Année de publication :	2014
Article en page(s) :	p.174 - p.180
Langues :	Anglais (eng)
Mots-clés :	distance caregiving  Alzheimer's disease  dementia
Résumé :	Introduction This research study focused on exploring the lived experience of people caring for someone with Alzheimer's disease and related dementia from a distance (defined as 2 or more hours' distance by car) to help shed light on this caregiving population. Method Ten participants (all adult children caring for a parent with Alzheimer's disease and related dementia) were involved in this qualitative, phenomenological study. Each participant took part in two individual interviews, the first interview in person with a folluw-up interview by telephone phone. After the interviews were transcribed, date were analysed using Moustaka's (1994) modified Van Kaam Method. Findings Six general themes were derived from quotations from participants, revealing different aspects of the distance caregiving experience. Findings indicated that participants spent much time managing and coordinating the care of their relative. Participants indicated a wish to provide effective care, and felt that the process of providing care to their relative impacted their professional and personal lives, including developing deeper connections with their relative and others. According to participants, the experience of caregiving, and balancing caregiving demands with other life demands, led to personal changes and growth. Conclusion Occupational therapists and other healthcare professionals need to interact and communicate with distance cargivers of people with Alzheimer's disease and related dementia to better support the caregivers and the care being provided to the person with dementia
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[article] Distance caregivers of people with Alzheimer's disease and related dementia: a phenomenological study [texte imprimé] / Megan EDWARDS, Auteur . - 2014 . - p.174 - p.180.
Langues : Anglais (eng)
in The British Journal of Occupational Therapy > Volume 77 numéro 4 (Avril 2014) . - p.174 - p.180

Mots-clés :	distance caregiving  Alzheimer's disease  dementia
Résumé :	Introduction This research study focused on exploring the lived experience of people caring for someone with Alzheimer's disease and related dementia from a distance (defined as 2 or more hours' distance by car) to help shed light on this caregiving population. Method Ten participants (all adult children caring for a parent with Alzheimer's disease and related dementia) were involved in this qualitative, phenomenological study. Each participant took part in two individual interviews, the first interview in person with a folluw-up interview by telephone phone. After the interviews were transcribed, date were analysed using Moustaka's (1994) modified Van Kaam Method. Findings Six general themes were derived from quotations from participants, revealing different aspects of the distance caregiving experience. Findings indicated that participants spent much time managing and coordinating the care of their relative. Participants indicated a wish to provide effective care, and felt that the process of providing care to their relative impacted their professional and personal lives, including developing deeper connections with their relative and others. According to participants, the experience of caregiving, and balancing caregiving demands with other life demands, led to personal changes and growth. Conclusion Occupational therapists and other healthcare professionals need to interact and communicate with distance cargivers of people with Alzheimer's disease and related dementia to better support the caregivers and the care being provided to the person with dementia
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