Stanford Chronic Disease Self-Management Program in myotonic dystrophy: New opportunities for occupational therapists / Kateri Raymond in Canadian Journal of Occupational Therapy, 83(3) (juin 2016)

Public ISBD [article]  inCanadian Journal of Occupational Therapy > 83(3) (juin 2016) . - p.166-176 Titre : Stanford Chronic Disease Self-Management Program in myotonic dystrophy: New opportunities for occupational therapists Titre original : Stanford Chronic Disease Self-Management Program dans la dystrophie myotonique : De nouvelles opportunités pour les ergothérapeutes Type de document : texte imprimé Auteurs : Kateri Raymond ; Mélanie Levasseur ; Maud-Christine Chouinard ; [et al...] Année de publication : 2016 Article en page(s) : p.166-176 Langues : Anglais (eng) Mots-clés : ergothérapie  essais clinique  études de faisabilit  soins personnel  trouble neuromusculaire Résumé : Background. Chronic disease self-management is a priority in health care. Personal and environmental barriers for populations with neuromuscular disorders might diminish the efficacy of self-management programs, although they have been shown to be an effective intervention in many populations. Owing to their occupational expertise, occupational therapists might optimize self-management program interventions. Purpose. This study aimed to adapt the Stanford Chronic Disease Self-Management Program (CDSMP) for people with myotonic dystrophy type 1 (DM1) and assess its acceptability and feasibility in this population. Method. Using an adapted version of the Stanford CDSMP, a descriptive pilot study was conducted with 10 participants (five adults with DM1 and their caregivers). A semi-structured interview and questionnaires were used. Findings. The Stanford CDSMP is acceptable and feasible for individuals with DM1. However, improvements are required, such as the involvement of occupational therapists to help foster concrete utilization of self-management strategies into day-to-day tasks using their expertise in enabling occupation. Implications. Although adaptations are needed, the Stanford CDSMP remains a relevant intervention with populations requiring the application of self-management strategies. Permalink : ./index.php?lvl=notice_display&id=45307 [article] Stanford Chronic Disease Self-Management Program in myotonic dystrophy: New opportunities for occupational therapists = Stanford Chronic Disease Self-Management Program dans la dystrophie myotonique : De nouvelles opportunités pour les ergothérapeutes [texte imprimé] / Kateri Raymond ; Mélanie Levasseur ; Maud-Christine Chouinard ; [et al...] . - 2016 . - p.166-176. Langues : Anglais (eng) in Canadian Journal of Occupational Therapy > 83(3) (juin 2016) . - p.166-176 Mots-clés : ergothérapie  essais clinique  études de faisabilit  soins personnel  trouble neuromusculaire Résumé : Background. Chronic disease self-management is a priority in health care. Personal and environmental barriers for populations with neuromuscular disorders might diminish the efficacy of self-management programs, although they have been shown to be an effective intervention in many populations. Owing to their occupational expertise, occupational therapists might optimize self-management program interventions. Purpose. This study aimed to adapt the Stanford Chronic Disease Self-Management Program (CDSMP) for people with myotonic dystrophy type 1 (DM1) and assess its acceptability and feasibility in this population. Method. Using an adapted version of the Stanford CDSMP, a descriptive pilot study was conducted with 10 participants (five adults with DM1 and their caregivers). A semi-structured interview and questionnaires were used. Findings. The Stanford CDSMP is acceptable and feasible for individuals with DM1. However, improvements are required, such as the involvement of occupational therapists to help foster concrete utilization of self-management strategies into day-to-day tasks using their expertise in enabling occupation. Implications. Although adaptations are needed, the Stanford CDSMP remains a relevant intervention with populations requiring the application of self-management strategies. Permalink : ./index.php?lvl=notice_display&id=45307

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Cote	Support	Localisation	Section	Disponibilité
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